Living With Muscular Dystrophy as an Adult

In this episode of Muscle Owl Talks, host Peter Duffy chats with Jon Hastie, a Duchenne muscular dystrophy patient who made the film A Life Worth Living. Jon talks about the film and his charity DMD Pathfinders and what it’s like living with Duchenne as an adult.

MORE: Road to better muscular dystrophy treatment possible with the discovery of new muscle repair pathway. Find out more.

Joining Peter and Jon are Muscle Owl Talk regulars Michaela and Sulaiman, who contribute to the discussion and talk about the daily challenges they face with muscular dystrophy and how ever-improving technology is helping them in their daily lives.

MORE: Find out more about the nine main types of muscular dystrophy

Muscular Dystrophy News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or another qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

2 comments

  1. Mary says:

    I am disappointed in the states and even the counties with the help these people can get in the home when they are trying to live in their home as long as they can. Either you have to be on medicaid or very destitute before help is available that is affordable. What do the adult’s do when they make about $50.00 too much to qualify for a medical card and do they all fall through the cracks? What do they have to do to get an aid service that will help them to just get up and bathed so they can go through the day? I have been researching this for some time and I find nothing—what is up with this–

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