Graduate With Muscular Dystrophy Gets His Dream Disney Trip


According to The Morning Call, 23-year-old DeSales University graduate Derek Szena desperately wanted to visit Disney World, but the cost of getting there and taking the nursing staff that he needs with him would cost more than $15,000.

MORE: Find out what it’s like to live with a muscle degenerative disease such as muscular dystrophy

Speaking with the newspaper earlier this year, Szena said he got the idea to travel after watching the film The Fundamentals of Caring which features a Duchenne MD patient and his carer undertaking a road trip.

Szena from Lehighton, Pennsylvania would need three nurses to provide the 24-hour care that he requires, including cleaning his feeding tube, feeding him and looking after his ventilator.  To raise the finances needed to take the trip in April he set up an online fundraising page, but he had only managed to raise $70 before he was first interviewed by the newspaper.

Thankfully, Szena’s story touched the hearts of people in his community and he raised the $15,000 he needed to make the trip. Along with the three nurses, he planned to travel down the east coast of the U.S. in April, ending up at Disney World in Orlando, Florida.

MORE: Find out more about the comedy-drama The Fundamentals of Caring

Muscular Dystrophy News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or another qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

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One comment

  1. Michelle says:

    It was a dream of ours to take our boys to Disneyland, but when they were older. When we were told our son had DMD, we decided we needed to fast track our dream and make it happen. We did fundraising and a band called YooVeeX did an 80’s gig and donated the ticket money which really helped. We also did a Fund Page and had some raffles. It was an amazing trip. My son has a love for roller coasters now and wants to visit all The Disneyland Parks and Universal Studios around the world. We wish we could take him to a different one each year, it’s the cost that is going to prevent us.

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