30 Days of MD: Being a Teenager with MD

30 Days of MD: Being a Teenager with MD
0
(0)

View this post on Instagram

Day 1 of #30daysofMD Introducing, Destiny! I was born with Muscular Dystrophy, but I wasn’t diagnosed until I was 9 years old. Actually, I didn’t appear to have any major symptoms until I was 9, so up until that year, I was normal. My regression would go deathly slow, and then all at once. I remember the moment I lost mobility in my right arm: I was in karate class, doing warm ups. I through my right punch right in front of me and it slowly dropped down to my side and I was unable to pick it back up. Like I said, at the time it happened, I was normal. My Sensei yelled that my form was wrong, and everyone around me just assumed I was incapable of performing a simple task. My doctors suggested almost immediate surgery on my right arm because it was my dominant hand; I had already been scheduled for surgery due to loss of mobility in my left arm. The rest of my mobility loss followed this abrupt pattern: barely detectable, then out of nowhere. School was very difficult for me, as I was still dealing with all the normal teenage drama/emotions, and now an added muscle eating disease. I got weaker as the years went by, and it was something that I just had to deal with. Life’s not going to stop because you asked nicely, so I kept moving. I remember being crippling embarrassed (pun intended) the first day I had to ride a wheelchair into school. I was beyond mortified. I also remember falling into -what I like to call- my “Great Depression”. But through God, I prevailed and have been living my life as best I can since. I’m currently shopping for wheelchairs like they’re new Bugattis, and trying to be the best version of myself. I’m only 16 but I feel like I’ve already lived a thousand lives. I think overall, I can say that I’m grateful for my experience. I’ve learned many life lessons and think that I am a better person because of what I’ve gone through. I’m embracing that crippled lifestyle and I do it through the support of my friends, family, God and the MDA community.

A post shared by MDNewsToday (@mdnewstoday) on

×
Latest Posts

How useful was this post?

Click on a star to rate it!

Average rating 0 / 5. Vote count: 0

No votes so far! Be the first to rate this post.

As you found this post useful...

Follow us on social media!

We are sorry that this post was not useful for you!

Let us improve this post!

Tell us how we can improve this post?