COVID-19 has forced families around the world to stay indoors and spend a lot more time together. This…
Articles by Hawken Miller
I’ve always sought silver linings, including in this season of social distancing. Many people now exclusively use technology to communicate…
The Living Rare, Living Stronger Patient and Family Forum, originally set for May 14–16 in Cleveland, Ohio,…
This week, I celebrate my one-year anniversary of writing columns for Bionews Services.
When Shawn Welch was diagnosed in 1979 with facioscapulohumeral muscular dystrophy (FSHD), his…
If we lived in a fair world, Duchenne muscular dystrophy would not exist. Unfortunately, life…
Starting a 501(c)(3) tax-exempt nonprofit isn’t easy, but the National Organization for Rare Disorders…
Adults with Duchenne muscular dystrophy (DMD) should help younger generations through the difficult parts of growing up…
The U.S. Food and Drug Administration (FDA), a vast government bureaucracy, employs about 17,500…
Life with Duchenne muscular dystrophy is far from predictable. We can’t foresee how…