Our Forums moderator Kevin Schaefer shared great advice for making the most out of your time while at home. To…
Articles by Isaura Santos
BioMarin Pharmaceutical Inc. has recently announced that the United States Food and Drug Administration (FDA) attributed a rare pediatric disease designation…
Parent Project Muscular Dystrophy (PPMD), a nonprofit organization on the front line against Duchenne muscular dystrophy (Duchenne), has recently announced it…
The Muscular Dystrophy Association is offering an exclusive opportunity to those who want to participate in the sold out…
Merozyne Therapeutics AB recently initiated a project with the goal of developing a pharmaceutical treatment to address laminin alpha2 chain-deficient congenital…
The 5th Annual Getzlaf Golf Shootout to benefit CureDuchenne will take place on September 12th at Sutra Lounge in…
The FSH Society, a Massachusetts-based charity supporting research into facioscapulohumeral muscular dystrophy (FSHD), has announced that it recently completed the 2nd edition…
The Muscular Dystrophy Association (MDA) has begun another season of its well known summer camp, marking its 60th year in operation.
Jordan McLinn is turning 6 years old and his mom has a single birthday wish: the possibility of watching him grow up and have…
The Indoor Waterpark and opening weekend at Camelback Lodge in Pennsylvania played a major role in making this year’s 28th annual…