When you have a friend or family member who’s experiencing health problems, your first thought might be…
Leah Leilani
Leah is a Southern California-based patient writer. She’s been an active member of the muscular dystrophy community since her regional ambassadorship with the MDA beginning at the age of 10 after her diagnosis of a rare neuromuscular disease, mitochondrial myopathy (Mito). Leah advocates for those with disabilities and promotes an understanding of her condition by evoking a positive outlook upon the obstacles she faces. Leah’s work doesn’t just stop at her column: she also doubles as a co-moderator on the MD News Forums. Away from her jobs, Leah is known among family and friends for her artistic creativity and outgoing personality.
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Articles by Leah Leilani
Everyone’s idea of what makes for a happy life is different. For example, some people like traveling…
It’s not always easy to be positive with a disability, especially in the beginning. It’s hard to see your friends…
With technology at our fingertips, being unplugged and off grid can seem like something that exists only in a fiction novel.
Why I Drink Gatorade
In 1965, a coach for the University of Florida football team — the Gators — noticed that his players were…
People are always surprised at how faithful my family is. They think that because of my illness we would automatically…
When I was little, I wore a medical ID bracelet because I had asthma. Twelve years later, I recently bought…
Leah Leilani Hello! My name is Leah, and 12 years ago, I was diagnosed with a rare…