When I first started my search for a possible partner in life, all I asked for was someone who’d love…
Leah Leilani
Leah is a Southern California-based patient writer. She’s been an active member of the muscular dystrophy community since her regional ambassadorship with the MDA beginning at the age of 10 after her diagnosis of a rare neuromuscular disease, mitochondrial myopathy (Mito). Leah advocates for those with disabilities and promotes an understanding of her condition by evoking a positive outlook upon the obstacles she faces. Leah’s work doesn’t just stop at her column: she also doubles as a co-moderator on the MD News Forums. Away from her jobs, Leah is known among family and friends for her artistic creativity and outgoing personality.
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Articles by Leah Leilani
Let me make it clear that I am not opposed to questions about my disease and why I use a…
For several years, I’ve been feeling nauseated in the mornings after I eat breakfast. Whatever food item occupies my plate…
Last Wednesday, July 24, was the four-year anniversary of the day I got my first and only tattoo. One month…
Last year, I wrote about the unfortunate side effects of the medication Lyrica (pregabalin), which I’ve been taking for…
Spoiler alert: This column contains stories from the book “Strangers Assume My Girlfriend Is My Nurse,” by Shane Burcaw. It…
My early years in this world were spent being a girlie girl. Along with my stash of crowns and fake…
Prior to my diagnosis, my family spent much more time traveling than we do now. Even though I’ve never traveled…
As women, we reach a point growing up when we must enter the intimates section of the department store to…
My life with mitochondrial myopathy has been a roller coaster, but my dog Andre was always there to…