My name is Leah. I'm 20 years old and I was diagnosed at the age of nine with a a rare form of Muscular Dystrophy called Mitochondrial Myopathy. I'm a former MDA Regional Ambassador and have recently started my own blog. My disease affects my energy levels and I can not get through the day without my wheelchair and taking naps.
Chronic illness can dramatically alter life perspective. If there’s anything I’ve learned from having mitochondrial myopathy, it’s gratitude for my surroundings. I guess I’ve developed a kind of mindfulness ... Read more
Being wheelchair-bound and still stylish can be the ultimate challenge. It’s hard to find that balance between style and comfort, especially as a woman. The average, able-bodied female millennial ... Read more
If you’re like me and have been closely monitored by a cardiologist for one reason or another (mine is tachycardia and cardiomyopathy), then you probably have or will have ... Read more
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