Author Archives: Leah Leilani

My Disability Does Not Mean I Am Broken

Let me make it clear that I am not opposed to questions about my disease and why I use a wheelchair. In fact, I encourage them. I mean, we might as well talk about the elephant in the room, right?  By this point in my life, I’m basically an…

I’m Not Letting My Fear of Surgery Control My Life

For several years, I’ve been feeling nauseated in the mornings after I eat breakfast. Whatever food item occupies my plate that morning — be it a chocolate chip muffin with a few strawberries or an apple with a side of yogurt — inevitably upsets my stomach. Fruits of any kind…

Experiencing the Healing Effects of Medical Marijuana

Last year, I wrote about the unfortunate side effects of the medication Lyrica (pregabalin), which I’ve been taking for my fibromyalgia pain. For a while now, I’ve considered the option of switching out my medication for medical marijuana.  I’m familiar with the use of cannabis for therapeutic…

The Battle Between Mitochondrial Myopathy and Makeup

My early years in this world were spent being a girlie girl. Along with my stash of crowns and fake pearls were things like brightly colored nail polish and some mini lipsticks bought at Sally’s Beauty. Little did I know that as I grew older and my mitochondrial myopathy…

Choosing the Right Dog Breed for My MD Lifestyle

Prior to my diagnosis, my family spent much more time traveling than we do now. Even though I’ve never traveled outside California, I still have memories of long, scenic car rides across the state to our vacation destination. I miss those winter days spent in a snow-covered cabin in the…

Grieving the Loss of My Furry Friend

My life with mitochondrial myopathy has been a roller coaster, but my dog Andre was always there to brighten my world. After days spent healing in a hospital room, I could look forward to coming home to my beloved Andre. If I was suffering through the flu and…