Mary Chapman, features writer —

Expanding its network of institutions that provide standardized, comprehensive care for Duchenne patients, the Parent Project Muscular Dystrophy (PPMD) has named Children’s National Health System its newest Certified Duchenne Care Center (CDCC). This most recent designation brings to 20 the number of clinics to pass muster since the CDCC…

A campaign hopes to raise awareness of Duchenne muscular dystrophy (DMD) and promote research toward a cure by asking supporters to paint a nail on one of their little fingers blue. The Pinkies Up campaign is gearing up for November. (Photo courtesy of CureDuchenne) Called “Pinkies…

To raise money for treatments and to support families touched by muscular dystrophy, the Muscular Dystrophy Association’s (MDA) New York Muscle Team will present its 22nd annual gala Dec. 3 in New York City. To be held at Cipriana Wall Street, the event will feature former New York…

The digital health firm ZappRx is working with CureDuchenne to provide faster and more efficient delivery of treatments for Duchenne muscular dystrophy to patients starting next year. ZappRx streamlines the often-complicated processes involved in ordering specialty medications by collecting and storing required information from pharmacies, insurance companies and medical providers.

The Greiner family recently held its 10th Miles for Matthew fundraising event for Parent Project Muscular Dystrophy (PPMD) in Greensboro, North Carolina, the nonprofit announced. Determined to continue to make a difference in the life of Matthew Greiner and others who have Duchenne muscular dystrophy (DMD), the…

With an emphasis on standards of care, groups such as the Parent Project Muscular Dystrophy and the Jett Foundation are gearing up for Sept. 7, World Duchenne Awareness Day (WDAD) 2018.  Organizations are recommending a host of ways to raise awareness for Duchenne muscular dystrophy,…