This segment covers practical strategies for optimizing morning routines, selecting adaptive clothing, organizing the home, and pacing daily energy.
This segment explores key strategies for requesting workplace accommodations, navigating accessible travel, and preparing effectively for emergencies.
This segment focuses on managing personal care assistants (PCAs), navigating family communication, utilizing PAG tools, and preventing burnout.
In recognition of Muscular Dystrophy Awareness Month in September, the Muscular Dystrophy Awareness Month campaign features a series of stories highlighting the real-life experiences of people affected by muscular dystrophy, written in their own words.
Discussion
I have lived with limb-girdle muscular dystrophy (LGMD) type 2E/R4 for more than 40 years. Initially, apart from stretching and visiting a neuromuscular clinic twice a year, I didn’t think much about managing my…
Discussion
In recognition of Duchenne Muscular Dystrophy Awareness Month in September, the Duchenne Muscular Dystrophy Community Spotlight campaign features a series of stories highlighting the real-life experiences of people affected by Duchenne muscular dystrophy, written in…
Discussion
Last week, I traveled with my sons Max, Rowen, and Charlie to Colorado for their multidisciplinary neuromuscular clinic visit at a children’s hospital. My husband and I typically don’t both travel with the boys,…