Mary Chapman, features writer —

A 5-year-old boy has received an  infusion of Elevidys, the recently approved gene therapy for Duchenne muscular dystrophy (DMD), at Nationwide Children’s Hospital, where the treatment was first investigated. Gideon Griffiths of Bellefontaine, Ohio, who was diagnosed with DMD at birth, is among the first group of patients nationwide…

Thousands of retailers across the U.S. are helping the Muscular Dystrophy Association (MDA) kick off MDA Shamrocks, its annual fundraising campaign in support of those living with muscular dystrophy, amyotrophic lateral sclerosis, and other neuromuscular disorders (NMDs). Money raised through the effort — said to be…

CITGO raised $2.3 million this year to help advance research, improve patient care, and bolster advocacy efforts for the neuromuscular community, continuing its long-standing support for the Muscular Dystrophy Association (MDA), . Throughout the year, employees of the Houston, Texas-based petroleum company, along with vendors, contractors, marketers,…

Parent Project Muscular Dystrophy (PPMD) and Duchenne UK will jointly award up to $1 million to two research projects that seek to develop new treatments for Duchenne muscular dystrophy (DMD), especially those involving cell and gene therapy. The call for proposals for projects, which are expected…

The Muscular Dystrophy Association (MDA) will host the MDA Tribute Awards Oct. 27 in Boston to honor four people who have contributed to progress in muscular dystrophy research and care, and in lobbying efforts on behalf of those with neuromuscular disorders, particularly Duchenne muscular dystrophy (DMD). The awards…

The beginning of a new college football season also means it’s time for Coach to Cure MD (CTCMD) — a campaign aimed at calling attention to Duchenne muscular dystrophy (DMD) and raising research funds for a cure. Slated for Sept. 24, the 15th annual event is a…

Note: This story was updated Aug. 31, 2022, to clarify that MDA Advocate Madison Lawson will throw out the honorary pitch at the Cardinals game alongside Donald S. Wood. Supporters across the country are poised to mark National Muscular Dystrophy Awareness Month, observed each September in the U.S. The…

Defeat Duchenne Canada is investing $1.14 million in three research projects aimed at providing better treatments for Duchenne muscular dystrophy, the most common type of muscular dystrophy and one that affects about 1 in 3,500 male births. The trio of three-year projects joins six other research efforts…

To help support its popular summer camp and the neuromuscular disease community, the Muscular Dystrophy Association (MDA) has launched campaigns through October that involve more than 1,000 retailers nationwide. Proceeds from the MDA’s summer retail campaigns will benefit research, care, and advocacy for those living with muscular…

Thirteen new hospitals and health institutions have been added to the Muscular Dystrophy Association’s MDA Care Center Network, expanding the network’s reach across the United States. These additions, which comprise more than 150 care centers, include 10 new grant awards as well as three care affiliates that have been…