The Rare Diseases Clinical Research Network (RDCRN) has opened an online survey to better understand how the…
Articles by Mary Chapman
The National Organization for Rare Disorders (NORD) has opened a financial assistance program for people in rare disease community…
A CureDuchenne Ventures equity investment will support Dyne Therapeutics in developing precision treatments aimed at repairing muscles in Duchenne and other…
Invitae and the Muscular Dystrophy Association (MDA) are partnering to expand access to free genetic testing and post-test…
The sixth annual Napa in Newport wine auction raised more than $1 million to support CureDuchenne’s mission to…
Beginning on Feb. 29, Rare Disease Day, chapters from notable scientific books and clinical review articles covering rare disorders will…
Continuing its support, CITGO marketer Graham Enterprise (GEI) raised $123,000 last year for the Muscular Dystrophy Association (MDA).
Four grassroots organizations are collaboratively funding a $200,000 grant to a University of Missouri School of Medicine researcher to…
PTC Therapeutics has launched its sixth annual global grant program for patient advocacy organizations that seek to develop innovative…
An abundance of events are afoot around the world to mark Rare Disease Day 2020 on Feb. 29. The…