Wendy Henderson,  —

Parent Project Muscular Dystrophy offers a mobile app that can help Duchenne MD patients and caregivers get the most out of appointments with their healthcare team and keep up to date and on all the latest news about the disease. MORE: Coping with your child’s neuromuscular disorder diagnosis. The…

In this video from Muscular Dystrophy UK, two teenagers share what it’s like living with the disease and some of the frustrations they experience on a day-to-day basis. MORE: How service dogs can benefit people with neuromuscular disorders. Fourteen-year-old Sam from Cheltenham and 13-year-old Zoe…

A powerful new genome editing tool clustered regularly interspaced short palindromic repeats or CRISPR/Cas9 could offer a solution in the treatment of Duchenne muscular dystrophy (DMD). CRISPR/Cas9 mimics the way bacteria works by eliminating the DNA of invading viruses and replacing it with part of its own DNA, slicing into the DNA and rebuilding…

Having a service dog can greatly enhance the life of someone living with muscular dystrophy. They allow patients to regain some of their independence by helping with small everyday tasks like opening and closing doors, fetching meds, acting as a prop or support as their owner stands, switching on lights and attracting attention…

Gentle exercise has many health benefits, particularly for caregivers of patients with chronic illnesses. In this video, personal trainer Ryan Krane demonstrates some simple exercises that can help counter the effects of chronic fatigue. MORE: Watch an animated explanation of muscular dystrophy here.  Krane shares five simple…

Emflaza (deflazacort) was approved by the FDA in February 2017 to treat children over the age of five with Duchenne muscular dystrophy (DMD). Unfortunately, due to issues with pricing, the drug hasn’t been available to the public. MORE: DMD access to deflazacort will continue until the cost of Emflaza replacement is decided. The…

Finding out your child has a neuromuscular disorder is an incredibly difficult time for the whole family, but you adjust quickly. While your child’s unlikely to realize they’re different from other children when they’re young, they’ll start to question why they’re different from their peers and siblings as they get older. MORE:…

A family from Bridgend, Wales, U.K. has vowed to channel their energy into raising awareness of Duchenne muscular dystrophy, after a member of their family was diagnosed with the disease. MORE: Boy with Duchenne muscular dystrophy made an honorary police officer. Kirsty Smith first realized something was amiss with her five-year-old son,…

Respiratory care is an important element of care for muscular dystrophy (MD) patients. As the disease progresses, the muscles required to breathe and cough become weakened, forcing some patients to need assistance. MORE: Best practices involve multi-center cooperation for MD patients. Muscular Dystrophy Canada advises MD patients to educate…

Finding out your child has a neuromuscular disorder is an incredibly difficult time for the whole family. It’s perfectly normal to feel a range of emotions, from anger to guilt, depression to denial, as you come to terms with what the future holds. Many parents will go through a period…