30 Days of MD

Photo courtesy of Zee Zelinski Day 30 of 30 This is Zee Zelinski’s (@the.beautiful.gods) story: There are things no one tells you after receiving a diagnosis. No one could have possibly prepared you for what you’re about to go through. This was not your fault. Feel the…

Photo courtesy of Cynthia Mayeshiro Day 29 of 30 This is Cynthia Mayeshiro’s story: As a young woman, my passion was mountaineering. I felt at home in the backcountry. My outdoor skills became refined with every hike. I learned to stay safe, to reach my destination, and to know…

Photo courtesy of Meredith Huml Day 28 of 30 This is Meredith Huml’s story: Independence has been a goal of mine for many years. I haven’t always chased after it in the healthiest manner. I need help in different ways than most people. I don’t like to make unusual…

Photo courtesy of Scott Bisi Day 27 of 30 This is Scott Bisi’s (@cougarhousegarage) story: My name is Scott Bisi, and I have always had big dreams. Living with muscular dystrophy (MD) and wanting to follow my dream of working in the automotive industry was challenging at first.

Photo courtesy of Mindy Henderson Day 26 of 30 This is Mindy Henderson’s (@mindyhendersonspeaks) story: When my daughter was 12, I went with her to a parent’s night at a community event. We got into small groups and the kids each had to say what they liked best…

Photo courtesy of Hannah Lowe Day 25 of 30 This is Elizabeth Lowe’s story: My grandson Austin was diagnosed with LMNA-related congenital muscular dystrophy (L-CMD) just before the pandemic lockdown in early 2020. My daughter, Hannah, and her husband, Mark, had noticed that Austin had stopped picking up…

Photo courtesy of Faye Flatt Day 24 of 30 This is Faye Flatt’s story: I was diagnosed with Facioscapulohumeral muscular dystrophy (FSHD) at age 21 when my cousin was referred to a neuromuscular specialist who asked to see family members with similar physical characteristics. My mother was diagnosed…

Photo courtesy of Anjélica Ramírez Day 23 of 30 This is Anjélica Ramírez’s story: My name is Angélica Ramírez. I just turned 23 years old. I am a writer and a student in my penultimate year of medicine. Throughout my life, I have suffered great adversities associated with my…

Photo courtesy of Briana Mills Day 22 of 30 This is Briana Mills’ (@brianamills) story: I always knew I was different. As one of the only physically disabled children in regular public school classes, I was shamed by other kids because of my disability. Learning how to navigate…

Photo courtesy of Betty Vertin Day 21 of 30 This is Betty Vertin’s (@bettyvertin) story: My name is Betty Vertin. I live in Nebraska with my husband and children. My family is big! Three of my sons are living with Duchenne muscular dystrophy (DMD). Their names are…