Columns

I recently participated in a panel discussion at CureDuchenne 2019 Futures titled “Friends.” I gave a brief presentation, along with other members of the disease community, on the importance of friendship. From the responses we received, it was clear to us that many parents present at the event were…

We often have the radio on at home in the mornings to keep up with news and events. I was working at my home desk recently when I heard an astonishing comment from an on-air guest on a program broadcast by our local radio station. The guest was discussing the…

I’ve just wrapped up my internship with The Washington Post. My experience has made me think about the added benefits that a job brings. When you have Duchenne muscular dystrophy, a job forces you to find a way to overcome your challenges, helps you to discover your life’s…

My first column for Muscular Dystrophy News Today focused on the excitement of starting something new in life. I promised that future columns would focus on the many adventures awaiting us. The hope of traveling and seeing the world is exciting. And companies are offering better information about accessible…

In the summer of 2017, I received an email from a woman named Serena Lawrence. She had discovered me on Instagram, and had learned about my past ambassadorship with the Muscular Dystrophy Association and my blog “Millennial On Wheels.”  She told me about a job opening as a columnist…

Since early childhood, we have all strived to become independent. We want to be able to do things on our own. However, to achieve independence with Duchenne muscular dystrophy, we must flip the typical definition of the word on its head.  When we think about…

I am proud to say that Muscular Dystrophy News Today is running a great initiative called “30 Days of MD.” This series of stories by patients, caregivers, researchers, and others will continue for the duration of September and will end with the day now recognized as LGMD Awareness…

This past weekend, I had the opportunity to take part in a very special conference in Chicago. I’d had the honor of seeing this event grow from the idea stage; the first planning meetings were over a year and a half ago. This was a watershed moment, as…

For most of my life, I’ve suffered from viral-induced asthma. While coughing and wheezing are often a constant with standard asthma, viral-induced asthma is triggered by infections such as the common cold or the flu. My first asthma memory was during my first-grade year. I missed a month of…

Life can get hectic sometimes, especially when you are dealing with a rare disease such as Duchenne muscular dystrophy. However, you shouldn’t let your busy schedule prevent you from making regular visits to your primary care physician or neurologist. At routine appointments, your doctors can track your…