Columns

Managing Body Temperature with Heat Intolerance

As you all know, summer is upon us, and that means trying our best to stay cool. Here in Southern California, the June gloom is almost gone and that familiar, nostalgic feeling of summer has finally come. Pretty soon, everyone will be blasting their air conditioning and licking…

Planning My Summer with Both Fun and Reality in Mind

As you may know if you’ve read my columns before, my form of muscular dystrophy is called mitochondrial myopathy. It renders my body unable to produce enough energy to function properly. Although I’m homeschooled, which reduces the hours I spend learning, it still takes up valuable time and energy.

Dating with a Disability: Part 2

Second in a series. Read the first here. It’s no mystery that romantic relationships take effort. They’re not always full of sunshine and flowers. They require good communication, patience, trust, and understanding. That’s not easy even for the regular able-bodied couple. If you or your partner…

Dating with a Disability: Part 1

Part one of a series. Last summer, I was looking through some Bionews Services articles when I came across one about online dating. The young woman who wrote the article talked about how she never felt like she fit in at school and because of that, she hadn’t…

My Journey to Love My Chronically Ill Body

Everyone suffers from insecurity every once in a while. It doesn’t matter whether you’re a man or a woman, a child or a teenager. Nor if you’re disabled or able-bodied. But when your body starts to fail you, that can sometimes escalate those occasional feelings of self-consciousness. Before…

12 Things to Pack for Your Hospital Stay

Whether you or your loved one has a chronic illness, it’s important to prepare for hospital stays. Despite my many visits to the emergency room, I’ve only had to stay in the hospital a few times. We keep a suitcase in the car full of essentials for an…