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In the disabled community, many people discuss the negative implications of being called “inspiring.” Some have said it’s objectifying, reduces our humanness, or congratulates us just for being disabled.  I agree with many of those statements; however, if I am helping a person work past their…

“Life can only be understood backwards; but it must be lived forwards,” said philosopher Søren Kierkegaard. He came up with an existential masterpiece. In a dozen words, Kierkegaard captured what we all struggle with in finding meaning in our lives. I find it much easier to look backward to…

It is undeniable that the coronavirus pandemic has affected many aspects of life. Along with establishing new norms for work, school, and social interaction, the pandemic has forced romantic relationships to undergo alterations.  “When can I see you again?” my boyfriend, Will, asked for the…

For a long time, I didn’t think journalism was a creative endeavor. I viewed the craft from an analytical perspective. After all, I was just recounting my firsthand experience publishing interviews and translating research. It wasn’t until recently — when I began reading the book “…

My parents tried to shield me as long as they could from data that revealed the average life expectancy of patients with Duchenne muscular dystrophy (DMD). Once I grew older and more curious, I finally came across those numbers, and they scared me. I…

On May 1, I became eligible for Medicare. This is one of those milestones in life. I was able to access this benefit a few years early because of my muscular dystrophy. I am now on Social Security Disability Insurance (SSDI). The way it works is that after…

Positivity is a characteristic that I naturally possess. I seldom struggle to find the bright side of situations. Although this attribute has saved me innumerous times from acquiring a negative disposition, I have not been completely unscathed by depression and anxiety.  My mental illness began early…

When I started my Twitch channel in February, I wasn’t sure what to expect. I became quite familiar with the video game streaming platform through journalism, and finally worked up the courage to start. In the four months since then, I’ve learned about starting a small business, branding, design,…

On May 21, the world celebrated its ninth Global Accessibility Awareness Day, but accessibility awareness hasn’t yet risen to its deserved level of interest. The awareness day website shares a great picture of this initiative’s potential scale: there are about a billion people with visual, hearing, motor, or cognitive…

The muscular dystrophy world is ever-evolving. I began to have symptoms of muscle loss and weakness in 2006. Science had not yet discovered my form of the illness, limb-girdle muscular dystrophy subtype 2L (LGMD2L). My physician, a member of the Muscular Dystrophy Association, told me they would find…