Columns

Author’s note: The COVID-19 crisis has already lasted several months. The reality is that we don’t know how this will go. But as a community, my opinion is that we need to be ready. We need to be knowledgeable. This column will focus on some work we have done to…

Netflix’s new documentary “Crip Camp” transports viewers to the peak era of peace-preaching hippies and civil rights activists. But amid these revolutions, another minority group struggled to find belonging: the disability community. To further their cause, Camp Jened’s hippie staff dedicated themselves to treating people with disabilities…

COVID-19 has forced families around the world to stay indoors and spend a lot more time together. This will not change for quite a while, especially for those of us with chronic conditions who need extra protection. As I wrote in my previous column,…

None of us have lived through something like what we are going through today. Some have attempted to equate it with other historical events. But there is a uniqueness to this pandemic. As far as I’m concerned, these comparisons aren’t helpful. We live in a unique period of technological advancement.

In the days when I still attended school, I was deemed an extrovert by my teachers and school officials. Never did I falter in putting myself “out there.” I was best known as the girl who won the talent show by belting out a Dixie Chicks song while…

I’ve always sought silver linings, including in this season of social distancing. Many people now exclusively use technology to communicate with family, friends, and co-workers to reduce viral spread. Instead of hanging out at inaccessible places, people connect from the comfort of home. Self-quarantine has yielded plenty of valid complaints,…

I feel strange not writing about the pandemic crisis in this column, but we’re already bombarded with information about it, and it appears we will deal with these issues for a while. So, I will be back in two weeks to discuss how I am living through the crisis. I…

I never have an answer to the questions, “Where do you see yourself in five to 10 years?” or “What are your future goals?” Mitochondrial myopathy is a rare and little understood disease, meaning I don’t know what lies ahead with my health. This can…

This week, I celebrate my one-year anniversary of writing columns for Bionews Services. A lot has happened in that year: I graduated from college, interned at The Washington Post, and secured a full-time newswriting position at Bionews. I’ve laughed a…

March 1 was my one-year anniversary with Bionews Services, the publisher of Muscular Dystrophy News. Defining a period in this manner allows me to see how far I’ve come in the past year. My columns have focused on a number of topics. In my column from May 2019, I…