It’s not always easy to be positive with a disability, especially in the beginning. It’s hard to see your friends do things that you can’t. The stares are hard to ignore, and there are people who simply don’t want to understand your situation. It doesn’t make life any easier, but…
With technology at our fingertips, being unplugged and off grid can seem like something that exists only in a fiction novel. New smartphones come out each year, cars have built-in wifi, and music and television can be accessed from our almost anywhere. Just like everything in life, technology has its pros…
In 1965, a coach for the University of Florida football team — the Gators — noticed that his players were being affected by heat-related illnesses. The coach then asked a team of physicians to determine the exact cause for his players falling ill. The physicians discovered that the team was…
People are always surprised at how faithful my family is. They think that because of my illness we would automatically throw our faith out the window, or that we would blame God for our circumstances. It’s quite the opposite actually. Growing up, I wouldn’t exactly say we were a family of…
When I was little, I wore a medical ID bracelet because I had asthma. Twelve years later, I recently bought a new one to replace the old one, which I lost. These days, with the progression of my disease and new symptoms popping up every few years, I have many…
Leah Leilani Hello! My name is Leah, and 12 years ago, I was diagnosed with a rare form of muscular dystrophy called mitochondrial myopathy. If you don’t know, mitochondria are the energy machines of the cell. They transform your food into energy so you can live. When…
Get regular updates to your inbox.