Party of 9 – a Column by Betty Vertin

“I didn’t think you’d jump with us,” said my daughter Mary, 9, breathing heavily as she bounced from trampoline to trampoline. It’s true; I’d never taken her or her little sister Callie, 2, to the trampoline park before. But we do fun things, I thought. After thinking some more, however,…

Recently, our family had terrific reasons to celebrate. I have three sons with Duchenne muscular dystrophy (DMD): Max, 18, Rowen, 15, and Charlie, 13. They are doing things we never imagined they’d do when they were young. Max, who recently graduated from high school, was in “The SpongeBob…

When three of my sons — Max, 18, Rowen, 15, and Charlie, 13 — were diagnosed with Duchenne muscular dystrophy between July 2010 and August 2011, my learning curve was practically a vertical line. When the diagnosing doctor first said “Duchenne,” it was the first time I had heard…

I feel relaxed — refreshed, even. We’ve had almost two weeks at home without any appointments or travel. The kids are complaining of boredom, but I’m letting boredom reign! It’s a beautiful but rare occurrence for my family of nine. My husband, Jason, and I have seven children: Lexi, 23,…

What’s it like to have three children with Duchenne muscular dystrophy (DMD)? That’s the question I’m asked more than any other, as a mom and caregiver to three sons with DMD: Max, 18, Rowen, 15, and Charlie, 13. Of course, that question is only asked by parents or grandparents…

My oldest son, Max, 18, graduated from high school last Sunday. Graduation is a milestone for all who achieve it, but since Max lives with Duchenne muscular dystrophy (DMD), it felt like an even greater accomplishment. I was bursting with emotion, including joy, relief, happiness, and fear.

Life with Duchenne muscular dystrophy (DMD) doesn’t get easier as time goes by, but it’s made better by laughter, love, and everything that’s learned along the way. Three of my seven children have DMD: Max, 18; Rowen, 15; and Charlie, 13. As you might imagine, my life is…

Spring is by far the busiest season for my family. I have seven children who range in age from 2 to 23 years old, and three of them, Max, 18, Rowen, 15, and Charlie, 13, are living with Duchenne muscular dystrophy (DMD). Caregiving for my three sons with…

I have three sons with Duchenne muscular dystrophy (DMD). Max, 18, Rowen, 15, and Charlie, 13, are part of a bustling family, joined by four other siblings: Lexi, 22, Chance, 16, Mary, 9, and Callie, 2. We have no sets of twins or multiples, yet I have often grouped…

It’s now tornado season here in Nebraska, which is part of the U.S. Tornado Alley. I could write a column about Duchenne muscular dystrophy (DMD) being like a tornado in the way it came tearing through the life we’d established when my three sons — Max, 18,…