Note: This column includes thoughts about suicide. Resources for help are listed at the end of the column. I delivered my first research presentation at the College of Alice & Peter Tan (CAPT) at the National University of Singapore (NUS) on Sept. 17. In March, my favorite lecturer from my…
Duchenne: Shalom's Lifelong Partner-in-Crime - a Column by Shalom Lim Ern Rong
Last week, I started a new job as a part-time community partnerships executive with K9Assistance, Singapore’s first assistance dog advocacy organization. Assistance dogs are service dogs trained to help disabled people perform tasks to mitigate their impairments. As a Duchenne muscular dystrophy survivor, I’ve always been intrigued…
As a person with Duchenne muscular dystrophy, I’ve always felt socially deprived and isolated. It’s been an extremely painful and lonely journey for me. Many of us with Duchenne also have undiagnosed anxiety and depressive disorders, adding layers of complexity to our already arduous paths. Most…
“You’ve got a friend in me.” The title of my favorite Disney theme song, by Randy Newman, has never had greater significance for me. The last thing I would’ve expected to be my friend has, in the depths of grief and sorrow, become my strongest ally. I am a…
Recent Posts
- My lesson about what not to do when you’re a DMD caregiver
- MDA Engage: National ambassador brings message of belonging, resilience
- Relentless FSHD progression is making it hard for me to find solid ground
- Approved Duchenne gene therapy may be safe for boys as young as 2
- Fixing accessibility issues at a choir concert so the show can go on