In this uplifting story from New Jersey News 12, a two-year-old boy with Duchenne muscular dystrophy has been made an honorary police officer at his local precinct. Seven ways Becker and Duchenne muscular dystrophy affect patients. The Spotwood police department in New Jersey invited Trent Powers and his family to…
Seven-year-old Ashlyn Barrett joined up with the Maryland college basketball team a couple of years ago as part of Project Impact, a program that pairs sports programs and children with serious illnesses. Ashlyn has muscular dystrophy. MORE: Burger King joined UP Arctic Blast to raise funds for muscular dystrophy.
Following her husband’s frustration at not being able to do up the buttons on his formal work shirts, Maura Horton came up with a simple and practical solution: magnetic buttons. Study finds that the protein responsible for Duchenne MD influences brain wiring. Find out more here. According to a report…
It’s devastating when a friend or family member is diagnosed with a terminal illness. You want to reach out to help, but you’re often unsure how to handle the situation and what to say—fearful of saying the wrong thing. We’ve compiled a list of ways to help support your loved through…
The Burger King restaurant in Kingsford, Michigan, joined forces with the semi-pro football team UP Arctic Blasts to host an event to raise money for the Muscular Dystrophy Association. RELATED: Ohio boy to start Exondys 51 for treatment for Duchenne muscular dystrophy. According to a report on uppermichigansource.com the…
One of the stars of the MTV reality show Teen Moms 2, Leah Messer, is opening up about her seven-year-old twin daughters Ali and Gracie and the impact muscular dystrophy has had on their lives. Ali was diagnosed with muscular dystrophy when she was four years old, and Leah’s decided that Ali’s twin…
If you suffer from a chronic illness, then it’s highly likely that you’ll experience fatigue from time to time. Fatigue is different than just feeling tired, and generally it’s not something that can be fixed with an early night or by resting for a little while. With tips from the pros at …
According to a report from Fox 8 Cleveland, a young boy from Ravenna, Ohio is to become the first muscular dystrophy patient in the state to receive the newly FDA-approved drug Exondys 51. Two brothers from Connecticut take advantage of the temporary approval of Exondys 51. Find out…
In this video from Muscular Dystrophy UK, patients, caregivers and medical professionals talk about some of the best practices that should be adopted when it comes to the treatment and management of muscle-wasting diseases such as muscular dystrophy and spinal muscular atrophy (SMA). They explain how many…
Deflazacort (Emflaza) is a drug used in the treatment of Duchenne muscular dystrophy (DMD). It’s generally given to patients five years and older and is a type of corticosteroid precursor which acts as an immunosuppressant and anti-inflammatory medication. Read our five tips for emotionally coping with Duchenne muscular dystrophy. Conducted in…
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