Austin Pinkerton may have muscular dystrophy but that hasn’t stopped him from enjoying his favorite sport, basketball. According to WHNT19 News, the senior at Hazel Green High School is the manager of the school’s varsity boys basketball team, the Trojans. High school teen Bryan Arnold from Anchorage…
According to The Morning Call, 23-year-old DeSales University graduate Derek Szena desperately wants to visit Disney World, but the cost of getting there and taking the nursing staff that he needs with him would cost more than $15,000. Find out what it’s like to live with a muscle…
Duchenne and Becker are two of the most common types of muscular dystrophy (MD). Both types of the disease mainly affect boys, with Duchenne MD (DMD)Â usually being diagnosed between the ages of three and five, and Becker MD (BMD) between the ages of 11 and 25. Although they tend to…
Crutches have long been a cumbersome device that designers haven’t thought twice about—until now. As you can see in this video from max, crutches have finally been given a much-needed makeover. Wearable robot hand could give muscular dystrophy patients better hand control. Instead of supporting the…
When your child starts school you may need some help settling in and preparing the school and teachers for meeting your child’s needs. The Muscular Dystrophy Association (MDA) offers a range of educational resources designed to help children with muscular dystrophy and spinal muscular atrophy (SMA) get the most…
https://www.youtube.com/watch?v=KW4WvLd5NqY This video from the World Duchenne Awareness Day shares some of the early symptoms of Duchenne muscular dystrophy. It’s estimated that one in 3500 boys will be born with Duchenne muscular dystrophy but most won’t present any symptoms of the disease until they are two or three years old.
Most three-year-olds only get to watch marathons from the sidelines or on television, but not Levi Gagner. The Rare Disease Report revealed that Levi, along with his dad Kyle, completed the Rock ‘n’ Roll half marathon last weekend. The Pheonix, Arizona event is the third race the two have competed…
In this episode of Muscle Owl Talks, host Peter Duffy chats with Jon Hastie, a Duchenne muscular dystrophy patient who made the film A Life Worth Living. Jon talks about the film and his charity DMD Pathfinders and what it’s like living with Duchenne as an adult.
https://www.youtube.com/watch?v=AF4D4TyE9NM&t=6s This video from the Duchenne Foundation outlines the clinical progression of Duchenne muscular dystrophy. It explains that for the first few years of a child’s life, there will be no obvious problems, but as the child ages, problems with mobility will start to appear. Find out about the nine main types of muscular dystrophy.
Anyone with a chronic illness will testify that they spend a lot of time in the doctor’s office having blood work done. Which means getting pricked with a lot of needles, which can sometimes take two or three (or more) attempts to find a compliant vein. Here are three different types…
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