Social Clips

What’s your nighttime routine like? In this humorous video from Gifted Lift, Lauren gives us a sneak peek into her nighttime routine as a person with a chronic illness. Here are some exercises and stretches adapted for muscular dystrophy patients. Having a healthy snack, enjoying life to the fullest, checking in with friends,…

In this animated video from the Parent Project Muscular Dystrophy, Tim and Moby talk about Duchenne muscular dystrophy in a way that children of all ages can understand. The cartoon duo explains that Duchenne muscular dystrophy (DMD) affects approximately one in 3,500 boys and they are usually diagnosed between the ages…

It can sometimes be a challenge to look on the bright side when you have a chronic illness, but spending time doing things that make you happy will help keep depression at bay, help you come to terms with your illness better and begin enjoying life again. To help you feel happier,…

https://www.youtube.com/watch?v=68YO2eh1bIY YouTuber Ethan Britt takes time out from his usual filmmaking to discuss a subject close to his heart. In this video, the 18-year-old from Raleigh, North Carolina talks about when he was diagnosed with Becker muscular dystrophy (MD). Find out seven ways that Duchenne and Becker muscular…

Learning that a loved one has a chronic illness is devastating, and even more so if that illness is likely to cut their life short. Everyone deals with the death of loved ones differently, the grieving process is varied and there is no wrong or right way to go about…

Having muscular dystrophy (MD) doesn’t mean that you can’t participate in fun events, you just need a little bit of imagination and some help along the way to make it happen. According to a report from the Cairns Post, a 10-year-old boy with muscular dystrophy took part in a…

Researchers have identified a way of changing parts of DNA sequencing to be used as a treatment for genetic diseases. The CRISPR/Cas9 therapy (or clustered regularly interspaced short palindromic repeats) is a new method of genome editing which can be used in the treatment of Duchenne muscular dystrophy. UT Southwestern researcher…

Winter is a perilous time if you have a compromised immune system, but you can’t stay alone inside for four months. You have to get on with your daily life, and just hope you don’t succumb to other people’s bugs and illnesses. However, there are some foods that can help you avoid catching a cold…

A family from Torrington, Connecticut is taking advantage of the FDA’s temporary approval of the muscular dystrophy drug Exondys 51 (or Eteplirson). In a report from Fox61.com, mom Mel Kelly had joined an MD movement that applied pressure on the FDA to approve the drug. Find out more…

As boys with Duchenne muscular dystrophy get older, their disease progresses and it’s likely that their emotional response to the disease will change over time. It’s perfectly natural for Duchenne MD patients to experience frustration, anger, self-pity and anxiety regarding their condition, but there are ways that you can help…