In this video from Muscular Dystrophy UK, Dr. Ros Quinlivan from the Queen’s Square Centre for Neuromuscular Diseases in London talks about health care for people living with congenital muscular dystrophy. MORE: Four treatment areas for muscular dystrophy Dr. Quinlivan explains that CMD covers a wide…
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Olympian and fastest man on the earth, Usain Bolt, has teamed up with watch makers Hublot to design a special edition watch that will be auctioned in support of Duchenne muscular dystrophy (DMD) research, according to TMZ.com. MORE: Six complications of muscular dystrophy The 18-carat gold and sapphire watch is…
Muscular dystrophy (MD) is a neuromuscular disorder, characterized mainly by progressive muscle loss. Physical therapy plays an important role in MD treatment, however, there are many myths out there about the practice and its benefits. The American Physiotherapy Association has useful information to help set the record straight. You need a referral…
This Muscular Dystrophy UK video is all about Robert Watson from Renfrew, Scotland. The 29-year-old was diagnosed with Duchenne muscular dystrophy 23 years ago, when he was just six years old. In his spare time, Robert likes to play powerchair football and socialize with his friends at nightclubs, concerts…
https://www.youtube.com/watch?v=9z4jkn4Wv3w In this video from MoveForwardPT, a physical therapist (PT) from the Children’s National Medical Center talks about the role PTs play in optimizing movement for children with muscular dystrophy (MD) and spinal muscular atrophy (SMA). MORE: The cost…
These five muscular dystrophy patients are inspiring the entire community with their stories and their outlook on life. In this inspiring video from MDA, we meet Jimmy Valdes and his wife, Julie. Originally from Queens, New York, 47-year-old Jimmy was diagnosed with spinal muscular dystrophy (SMA) in 1971…
Managing a chronic illness can be difficult. There are many different medications to take (often at different times), appointments to remember, symptoms to keep track of, and lots of information to absorb. Thankfully, living in a digital age means that there are numerous mobile apps that can help you manage…
A recent study has found that wearing hand braces while sleeping may help boys with Duchenne muscular dystrophy retain some of their muscle function. MORE: Watch what happens when children meet a man with muscular dystrophy The small clinical trial had eight boys with the condition who had impaired wrist extension…
In this video from Gawker, Rich Juzwiak talks to comedian Steve Way to find out how having muscular dystrophy affects his life and how it impacts his comedy. MORE: Cyclists ride from Seattle to New York for facioscapulohumeral muscular dystrophy Way talks about the misconceptions…
These videos show how people living with muscular dystrophy (MD) can smash the stereotypes associated with having a disability, and lead rich and full lives. First up is 35-year-old Michael Klinkhamer, who has Becker muscular dystrophy. In this video shared by Story Hive, Michael explains that he spends all of…
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