Olympian and fastest man on the earth, Usain Bolt, has teamed up with watch makers Hublot to design a special edition watch that will be auctioned in support of Duchenne muscular dystrophy (DMD) research, according to TMZ.com. MORE: Six complications of muscular dystrophy The 18-carat gold and sapphire watch is…
According to the Muscular Dystrophy Association of New Zealand, there are some vaccinations that people who have a neuromuscular disorder should have on an annual basis, as well as other considerations to make about vaccinations. MORE: Talking to family members about your child’s neuromuscular disorder. The current guidelines in New…
Muscular dystrophy is a genetic condition that causes muscle weakness and a loss of muscle mass. There is no cure for any type of muscular dystrophy but there are treatments that can help patients manage the symptoms and improve their quality of life. MORE: Watch what happens when children meet a man…
We know dealing with muscular dystrophy sometimes feels like an uphill battle, both for the patients and the caregivers. You feel like you’re not doing enough or as if the disease is taking up all your time and attention. To help you on your journey, we’ve gathered a few quotes we…
James Baxter-O’Shea and his family from Oberon in New South Wales, Australia were finding it difficult to get around. Their current vehicle was old, full of rust and falling apart. When friends and neighbors heard about their plight, they decided to get together to help out the family, particularly James, who…
Muscular dystrophy (MD) is a progressive disease that causes muscle weakness and loss of muscle mass. There are many different types of muscular dystrophy that affect people differently and range in severity. According to the Mayo Clinic, some of the common complications associated with muscular dystrophy include:…
Coping with a chronic illness is challenging, both physically and emotionally. Often the illness can change the way we look, making us feel self-conscious or embarrassed. This is not helped by people commenting on physical changes like weight gain or loss, or other body or facial changes. MORE: Inspirational young people with muscular…
If you are active on social media and have a chronic illness, you’ve probably come across the term “spoonie.” The word comes from a woman’s explanation of how she has to manage her energy levels each day.  As she was in a cafe at the time, she grabbed a bunch of spoons…
In this super cute video from WatchCut Video, children of various ages meet a man living with muscular dystrophy and ask some candid questions about his life with the condition. MORE: Talking to family members about your child’s neuromuscular disorder. Amine talks about how having…
While living with a chronic illness can be challenging, there are ways that you can make life easier and live a happy and fulfilling life. Establishing good habits and routines takes time, but as Gunnar Esiason points out in his blog Own It, there are some “common sense approaches” to…
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