Managing a chronic illness can be difficult. There are many different medications to take (often at different times), appointments to remember, symptoms to keep track of, and lots of information to absorb. Thankfully, living in a digital age means that there are numerous mobile apps that can help you manage…
CAP-1002 is a cardiac cell therapy that is currently being investigated in clinical trials for the use of Duchenne muscular dystrophy (DMD)-related cardiomyopathy. Â MORE: Nine other areas of research for Duchenne MD. The therapy consists of allogenic cardiosphere-derived cells (CDCs), meaning it’s produced in a laboratory using heart tissue…
https://www.youtube.com/watch?v=9z4jkn4Wv3w In this video from MoveForwardPT, a physical therapist (PT) from the Children’s National Medical Center talks about role PTs play in optimizing movement for children with muscular dystrophy (MD) and spinal muscular atrophy (SMA). MORE: The cost of…
Speech-language pathologists (SLPs) or speech-language therapists (SLTs) do much more than help people with speech problems such as stuttering or mispronouncing words. For children and adults with neuromuscular disorders like spinal muscular atrophy (SMA), muscular dystrophy (MD) and amyotrophic lateral…
In this video from the Muscular Dystrophy Association, young adults living with muscular dystrophy (MD) reminisce about their experience at the MDA’s summer camp. MORE: Firefighters “fill the boots” for muscular dystrophy. Children and teenagers with muscular dystrophy can get a lot out of an…
Facioscapulohumeral muscular dystrophy (FSHD) is a genetic disease where the muscles in the face, shoulder blades, and upper arms become severely weakened over time, although other muscles can also be involved. The symptoms usually start before the age of 20 but facial weakness can begin in childhood. According to the…
Around the world, researchers are working tirelessly to come up with new treatments for Duchenne muscular dystrophy which will help slow down, stop, or reverse the devastating effects of the disease. There are a number of different areas that scientists are currently working on, which range from repairing muscle damage to protecting…
When James Baxter-O’Shea and his family moved from suburban Sydney to a small country town called Oberon, they were overwhelmed by the welcome they received. MORE: Inspirational young people with muscular dystrophy: Hayleigh Barclay However, since the family’s 18-year-old minivan’s so unreliable, the 21-year-old found that he was spending more and more…
This Muscular Dystrophy UK video is all about Robert Watson from Renfrew, Scotland. The 29-year-old was diagnosed with Duchenne muscular dystrophy 23 years ago, when he was just six years old. In his spare time, Robert likes to play powerchair football and socialize with his friends at nightclubs, concerts…
The name mitochondrial myopathy comes from the specific part of the cell the disease affects, called the mitochondria, which are small energy factories found inside most cells in our body. MORE: Remembering Mattie Stepanek “Myopathy” comes from two words: “myo” meaning muscle, and “pathy” meaning disease. If you put those…
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