31 comments

  1. Monica Tirado Lloret says:

    I am living in Holland, I am 42 years OLS and I am affected of OPMD (first stage). OPMD runs in my family for several generations and more than half of the descendants are diagnosed for it.
    Therefore, if I can help to speed up for a possible solutution on OPMD, I would-be ve very glad to join the clinical trials.

  2. Monica Tirado Lloret says:

    I am living in Holland, I am 42 years old and I am affected of OPMD (first stage). OPMD runs in my family for several generations and more than half of the descendants are diagnosed for it.
    Therefore, if I can help to speed up for a possible solution on OPMD, I would be ve very glad to join the clinical trials.

  3. Dear Sir,

    We are very grateful for your hard work and dedication.
    Me and my family (my young sister,my aunt) are interest to be patients clinical trial.

    Thank you.May God bless all of your team work to achieve much more success and best wishes to be cure for all patients.Amin.

  4. K K Raghu says:

    We are living in India, my son is 22 years old and affected of Muscular Dystrophy(BMD).
    Therefore, if I can help to speed up for a possible solution on MD, I would be ve very glad to join the clinical trials.

  5. Ruth says:

    Yes I would like to try the trial I have been diagnosed with FSHD and have been taking ambuteral tablets x3 per day for a couple of years now

  6. Joe Larkin says:

    I would love to be involved in clinical trials. I am a 62 year old male and live in Kentucky. Just diagnosed with OPMD. Thank you!

  7. trudy groff says:

    Looking for a trial for trama induced MD. in the DFW area of TX. Not able to supply insurance
    and my condition is getting worse.

  8. Ann Demarais says:

    I am interested in being part of the clinical trial! I was referred to you by Dr. Michio Hirano in NYC; he is interested in being a clinical center for the trial.
    Ann Demarais

    212-925-5210
    Thanks!
    Ann

  9. Karen Blevins says:

    I have been diagnosed with OPMD. It is very prevalent in my fathers family. I have had a myotomy and just recently had to have surgery to repair the ptosis of my eye lids. I am desperately seeking treatment and would be so grateful to be a part of the clinical trial.

  10. ELIZABETH CONNNOLLY says:

    my name is Elizabeth I am effected with Myotonic Dystrophy
    never knew until my baby brother was born with the neonatal for of myotonic dystrophy1 my onset began setting in in my late 30
    I am 49 .
    I hope to be in a trial study for Myotonic Dystrophy1 soon

  11. David Hall says:

    If you are still conducting clinical trials for this, I live in Miami Beach and I have Myotonic Dystrophy. I am a 39 year old male. Thank you

  12. Mary T DiTrolio says:

    Are you still looking for patients to participate in these trials? My son is 7 yrs old and suffering from DMD.

  13. Jack Bailey says:

    sign me up please , OPMD was passed on from my father it will nice to stop my sons from getting this miserable disease..

  14. Jessica Noronha says:

    Hi there,

    I am a very concerned sister. My brother has BMD and currently has heart failure. He’s seeing cardiologists buy the medication prescribed is giving him significant side affects. Would be interested in clinical trial. I’m in Canada, would like to reach out to anyone with bmd

  15. Susan McCormack says:

    My son has DMD. He is going to be 30 this March and is really wanting to be a part of clinical trials. We are hearing more and more promising results with reguard to CRISPR and, Serapta gene therapy as well. If there is any chance of him being a candidate please contact us!

  16. ALEXANDR says:

    my son is 7 years old, Duchenne myodystrophy, deletions 5 to 31 exons. Can we get into the research , or can we get more information?

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