yes I also the suffering from lgmd type 2b. I treat your disease Baba ramdev patanjali from taking medicine and I some rest.
Thanks.
From: —-
Bihari Dhanda
Haryana, India, (Phone No. +919813680702) [email protected]
I am 70 year old male with OPMD which is progressively getting worse. It is getting more and more difficult for me to walk. My legs don’t want to work any longer. Also, my eye lids are dropping and my swallowing is compromised. I’m losing strength in my arms as well. My speech is affected. I am desperate to find help. I am ready and willing to participate in a trial please!!
I am living in Holland, I am 42 years OLS and I am affected of OPMD (first stage). OPMD runs in my family for several generations and more than half of the descendants are diagnosed for it.
Therefore, if I can help to speed up for a possible solutution on OPMD, I would-be ve very glad to join the clinical trials.
I am living in Holland, I am 42 years old and I am affected of OPMD (first stage). OPMD runs in my family for several generations and more than half of the descendants are diagnosed for it.
Therefore, if I can help to speed up for a possible solution on OPMD, I would be ve very glad to join the clinical trials.
We are living in India, my son is 22 years old and affected of Muscular Dystrophy(BMD).
Therefore, if I can help to speed up for a possible solution on MD, I would be ve very glad to join the clinical trials.
I am interested in being part of the clinical trial! I was referred to you by Dr. Michio Hirano in NYC; he is interested in being a clinical center for the trial.
Ann Demarais
I have been diagnosed with OPMD. It is very prevalent in my fathers family. I have had a myotomy and just recently had to have surgery to repair the ptosis of my eye lids. I am desperately seeking treatment and would be so grateful to be a part of the clinical trial.
my name is Elizabeth I am effected with Myotonic Dystrophy
never knew until my baby brother was born with the neonatal for of myotonic dystrophy1 my onset began setting in in my late 30
I am 49 .
I hope to be in a trial study for Myotonic Dystrophy1 soon
I am a very concerned sister. My brother has BMD and currently has heart failure. He’s seeing cardiologists buy the medication prescribed is giving him significant side affects. Would be interested in clinical trial. I’m in Canada, would like to reach out to anyone with bmd
My son has DMD. He is going to be 30 this March and is really wanting to be a part of clinical trials. We are hearing more and more promising results with reguard to CRISPR and, Serapta gene therapy as well. If there is any chance of him being a candidate please contact us!
I am a 68 year old male with OPMD passed down through my French fraternal grandmother’s family. My older brother is also affected. Having watched the progression of this affliction in my grandmother, father, aunt and brother I am interested in your clinical trials as a path to helping new generations that become afflicted.
I am 20 (male), and I suffer from LGMD 2A. I am extremely interested in partaking in clinical trials as they seem to be the only promise as I age. I hope to be able to partake before my mobility worsens.
Genetically tested positive for OPMD. Willing to participate in clinical trial Presently live in So CA. Please contact me if you are looking for candidates. Thank you
Hi i am a 18year old male currently living in Sweden. I’ve been diagnosed with Limb girdle muscle dystrophy 2a (test made by cutting out a muscle sample). At first when i got my diagnose(+-2015) it was simple beacuse I still had the mobility to walk, being able to stand up from both a sitting and laying position. And i had enough amount of power and strength to do almost anything I wanted to. And right now my mobilty have gotten worse I can still walk, i can stand up witb difficulty from a sitting position but I can’t get up from a laying position. Because of the slow progressing weakness and the anxiety over the fact that i can’t function like a normal individual and do whatever I want and accomplish some of my dreams.I still remember when i found your webpage and started to follow it’s newsletter and a little spark of hope lightened up inside of me when I started reading about trying to possible treatments for LGMD2a. And i am extremely interested in maybe being able to participate in clinical trials. I just want to be able to live as happy and healthy as possible. Kind regards Oscar
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Interested to be part of clinical trial.
Yes I want to be part of clinical trial I am suffering from lgmd type 2b
yes I also the suffering from lgmd type 2b. I treat your disease Baba ramdev patanjali from taking medicine and I some rest.
Thanks.
From: —-
Bihari Dhanda
Haryana, India, (Phone No. +919813680702)
[email protected]
I am 70 year old male with OPMD which is progressively getting worse. It is getting more and more difficult for me to walk. My legs don’t want to work any longer. Also, my eye lids are dropping and my swallowing is compromised. I’m losing strength in my arms as well. My speech is affected. I am desperate to find help. I am ready and willing to participate in a trial please!!
I am interested in this clinical trial.
I am living in Holland, I am 42 years OLS and I am affected of OPMD (first stage). OPMD runs in my family for several generations and more than half of the descendants are diagnosed for it.
Therefore, if I can help to speed up for a possible solutution on OPMD, I would-be ve very glad to join the clinical trials.
I am living in Holland, I am 42 years old and I am affected of OPMD (first stage). OPMD runs in my family for several generations and more than half of the descendants are diagnosed for it.
Therefore, if I can help to speed up for a possible solution on OPMD, I would be ve very glad to join the clinical trials.
Yes I am
Interested to be part of clinical trial.
Instrested in this clinical trail
I am interested in this clinical trials
Yes I want to be in the clinical trials
Dear Sir,
We are very grateful for your hard work and dedication.
Me and my family (my young sister,my aunt) are interest to be patients clinical trial.
Thank you.May God bless all of your team work to achieve much more success and best wishes to be cure for all patients.Amin.
Yes I want to be in the clinical trials. I am 45 with Myotonic Muscular Dystrophy. I live in Canada. I would be very glad to join the clinical trials.
I would love to be considered for clinical trials while i am still walking
We are living in India, my son is 22 years old and affected of Muscular Dystrophy(BMD).
Therefore, if I can help to speed up for a possible solution on MD, I would be ve very glad to join the clinical trials.
Hi Monica l also suffer from opmd runs in family looking for clinical trials while still in good health .
Yes I would like to try the trial I have been diagnosed with FSHD and have been taking ambuteral tablets x3 per day for a couple of years now
I would like to participate in FSHMD clinical trials. 53 yrs old in Southern California.
I would love to be involved in clinical trials. I am a 62 year old male and live in Kentucky. Just diagnosed with OPMD. Thank you!
Looking for a trial for trama induced MD. in the DFW area of TX. Not able to supply insurance
and my condition is getting worse.
I am interested in being part of the clinical trial! I was referred to you by Dr. Michio Hirano in NYC; he is interested in being a clinical center for the trial.
Ann Demarais
212-925-5210
Thanks!
Ann
I have been diagnosed with OPMD. It is very prevalent in my fathers family. I have had a myotomy and just recently had to have surgery to repair the ptosis of my eye lids. I am desperately seeking treatment and would be so grateful to be a part of the clinical trial.
I would likemy son with DMD to be on microdystrophin gene Theraphy trial
my name is Elizabeth I am effected with Myotonic Dystrophy
never knew until my baby brother was born with the neonatal for of myotonic dystrophy1 my onset began setting in in my late 30
I am 49 .
I hope to be in a trial study for Myotonic Dystrophy1 soon
I am interested to be part of this clinical trial.
I suffer from DMD.
If you are still conducting clinical trials for this, I live in Miami Beach and I have Myotonic Dystrophy. I am a 39 year old male. Thank you
Are you still looking for patients to participate in these trials? My son is 7 yrs old and suffering from DMD.
sign me up please , OPMD was passed on from my father it will nice to stop my sons from getting this miserable disease..
Hi there,
I am a very concerned sister. My brother has BMD and currently has heart failure. He’s seeing cardiologists buy the medication prescribed is giving him significant side affects. Would be interested in clinical trial. I’m in Canada, would like to reach out to anyone with bmd
My son has DMD. He is going to be 30 this March and is really wanting to be a part of clinical trials. We are hearing more and more promising results with reguard to CRISPR and, Serapta gene therapy as well. If there is any chance of him being a candidate please contact us!
my son is 7 years old, Duchenne myodystrophy, deletions 5 to 31 exons. Can we get into the research , or can we get more information?
I am a 68 year old male with OPMD passed down through my French fraternal grandmother’s family. My older brother is also affected. Having watched the progression of this affliction in my grandmother, father, aunt and brother I am interested in your clinical trials as a path to helping new generations that become afflicted.
I am 20 (male), and I suffer from LGMD 2A. I am extremely interested in partaking in clinical trials as they seem to be the only promise as I age. I hope to be able to partake before my mobility worsens.
Interested to be part of the clinical trial.
My son have a DMD we want to participate in clinical trial
Genetically tested positive for OPMD. Willing to participate in clinical trial Presently live in So CA. Please contact me if you are looking for candidates. Thank you
My son is 5 years old with DMD and we would like to participate in clinical trial. Please contact me if you are searching for candidates.
Hi i am a 18year old male currently living in Sweden. I’ve been diagnosed with Limb girdle muscle dystrophy 2a (test made by cutting out a muscle sample). At first when i got my diagnose(+-2015) it was simple beacuse I still had the mobility to walk, being able to stand up from both a sitting and laying position. And i had enough amount of power and strength to do almost anything I wanted to. And right now my mobilty have gotten worse I can still walk, i can stand up witb difficulty from a sitting position but I can’t get up from a laying position. Because of the slow progressing weakness and the anxiety over the fact that i can’t function like a normal individual and do whatever I want and accomplish some of my dreams.I still remember when i found your webpage and started to follow it’s newsletter and a little spark of hope lightened up inside of me when I started reading about trying to possible treatments for LGMD2a. And i am extremely interested in maybe being able to participate in clinical trials. I just want to be able to live as happy and healthy as possible. Kind regards Oscar
My husband has Becker’s and would be interested in a clinical trial.
I suffer from LGMD and RYR-1. Please consider me interested in your trials.
would like to get in on any clinical trail LGMD type2I
Hello,
My Son has diagnosed with DMD. We want to enroll him for gene therapy trials.
I’m live in Hungary (male 46 years old), my father (74 years old) and my sister (48 years old) we all have FSHD, and like to help to find a cure!
I have LGMD1A. Am interested in participating in your trial
I was diagnosed with LGMD1A long ago and am willing to participate in your trials.
80 year old male, otherwise in good health.