yes I also the suffering from lgmd type 2b. I treat your disease Baba ramdev patanjali from taking medicine and I some rest.
Thanks.
From: —-
Bihari Dhanda
Haryana, India, (Phone No. +919813680702) [email protected]
I am living in Holland, I am 42 years OLS and I am affected of OPMD (first stage). OPMD runs in my family for several generations and more than half of the descendants are diagnosed for it.
Therefore, if I can help to speed up for a possible solutution on OPMD, I would-be ve very glad to join the clinical trials.
I am living in Holland, I am 42 years old and I am affected of OPMD (first stage). OPMD runs in my family for several generations and more than half of the descendants are diagnosed for it.
Therefore, if I can help to speed up for a possible solution on OPMD, I would be ve very glad to join the clinical trials.
We are living in India, my son is 22 years old and affected of Muscular Dystrophy(BMD).
Therefore, if I can help to speed up for a possible solution on MD, I would be ve very glad to join the clinical trials.
I am interested in being part of the clinical trial! I was referred to you by Dr. Michio Hirano in NYC; he is interested in being a clinical center for the trial.
Ann Demarais
I have been diagnosed with OPMD. It is very prevalent in my fathers family. I have had a myotomy and just recently had to have surgery to repair the ptosis of my eye lids. I am desperately seeking treatment and would be so grateful to be a part of the clinical trial.
my name is Elizabeth I am effected with Myotonic Dystrophy
never knew until my baby brother was born with the neonatal for of myotonic dystrophy1 my onset began setting in in my late 30
I am 49 .
I hope to be in a trial study for Myotonic Dystrophy1 soon
I am a very concerned sister. My brother has BMD and currently has heart failure. He’s seeing cardiologists buy the medication prescribed is giving him significant side affects. Would be interested in clinical trial. I’m in Canada, would like to reach out to anyone with bmd
My son has DMD. He is going to be 30 this March and is really wanting to be a part of clinical trials. We are hearing more and more promising results with reguard to CRISPR and, Serapta gene therapy as well. If there is any chance of him being a candidate please contact us!
I am a 68 year old male with OPMD passed down through my French fraternal grandmother’s family. My older brother is also affected. Having watched the progression of this affliction in my grandmother, father, aunt and brother I am interested in your clinical trials as a path to helping new generations that become afflicted.
I am 20 (male), and I suffer from LGMD 2A. I am extremely interested in partaking in clinical trials as they seem to be the only promise as I age. I hope to be able to partake before my mobility worsens.
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Interested to be part of clinical trial.
Yes I want to be part of clinical trial I am suffering from lgmd type 2b
yes I also the suffering from lgmd type 2b. I treat your disease Baba ramdev patanjali from taking medicine and I some rest.
Thanks.
From: —-
Bihari Dhanda
Haryana, India, (Phone No. +919813680702)
[email protected]
I am interested in this clinical trial.
I am living in Holland, I am 42 years OLS and I am affected of OPMD (first stage). OPMD runs in my family for several generations and more than half of the descendants are diagnosed for it.
Therefore, if I can help to speed up for a possible solutution on OPMD, I would-be ve very glad to join the clinical trials.
I am living in Holland, I am 42 years old and I am affected of OPMD (first stage). OPMD runs in my family for several generations and more than half of the descendants are diagnosed for it.
Therefore, if I can help to speed up for a possible solution on OPMD, I would be ve very glad to join the clinical trials.
Yes I am
Interested to be part of clinical trial.
Instrested in this clinical trail
I am interested in this clinical trials
Yes I want to be in the clinical trials
Dear Sir,
We are very grateful for your hard work and dedication.
Me and my family (my young sister,my aunt) are interest to be patients clinical trial.
Thank you.May God bless all of your team work to achieve much more success and best wishes to be cure for all patients.Amin.
Yes I want to be in the clinical trials. I am 45 with Myotonic Muscular Dystrophy. I live in Canada. I would be very glad to join the clinical trials.
I would love to be considered for clinical trials while i am still walking
We are living in India, my son is 22 years old and affected of Muscular Dystrophy(BMD).
Therefore, if I can help to speed up for a possible solution on MD, I would be ve very glad to join the clinical trials.
Yes I would like to try the trial I have been diagnosed with FSHD and have been taking ambuteral tablets x3 per day for a couple of years now
I would like to participate in FSHMD clinical trials. 53 yrs old in Southern California.
I would love to be involved in clinical trials. I am a 62 year old male and live in Kentucky. Just diagnosed with OPMD. Thank you!
Looking for a trial for trama induced MD. in the DFW area of TX. Not able to supply insurance
and my condition is getting worse.
I am interested in being part of the clinical trial! I was referred to you by Dr. Michio Hirano in NYC; he is interested in being a clinical center for the trial.
Ann Demarais
212-925-5210
Thanks!
Ann
I have been diagnosed with OPMD. It is very prevalent in my fathers family. I have had a myotomy and just recently had to have surgery to repair the ptosis of my eye lids. I am desperately seeking treatment and would be so grateful to be a part of the clinical trial.
I would likemy son with DMD to be on microdystrophin gene Theraphy trial
my name is Elizabeth I am effected with Myotonic Dystrophy
never knew until my baby brother was born with the neonatal for of myotonic dystrophy1 my onset began setting in in my late 30
I am 49 .
I hope to be in a trial study for Myotonic Dystrophy1 soon
I am interested to be part of this clinical trial.
I suffer from DMD.
If you are still conducting clinical trials for this, I live in Miami Beach and I have Myotonic Dystrophy. I am a 39 year old male. Thank you
Are you still looking for patients to participate in these trials? My son is 7 yrs old and suffering from DMD.
sign me up please , OPMD was passed on from my father it will nice to stop my sons from getting this miserable disease..
Hi there,
I am a very concerned sister. My brother has BMD and currently has heart failure. He’s seeing cardiologists buy the medication prescribed is giving him significant side affects. Would be interested in clinical trial. I’m in Canada, would like to reach out to anyone with bmd
My son has DMD. He is going to be 30 this March and is really wanting to be a part of clinical trials. We are hearing more and more promising results with reguard to CRISPR and, Serapta gene therapy as well. If there is any chance of him being a candidate please contact us!
my son is 7 years old, Duchenne myodystrophy, deletions 5 to 31 exons. Can we get into the research , or can we get more information?
I am a 68 year old male with OPMD passed down through my French fraternal grandmother’s family. My older brother is also affected. Having watched the progression of this affliction in my grandmother, father, aunt and brother I am interested in your clinical trials as a path to helping new generations that become afflicted.
I am 20 (male), and I suffer from LGMD 2A. I am extremely interested in partaking in clinical trials as they seem to be the only promise as I age. I hope to be able to partake before my mobility worsens.