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Tagged: faking disability and MD, friends and strangers making comments, living with MD, lying about disability and MD, milking disability and MD, muscular dystrophy and sympathy, pity and MD, strangers and comments
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Accused of faking/ milking disability
Posted by danielle-dani-liptak on September 20, 2022 at 4:23 pmA friend told me that someone I knew said they thought I was lying or pretending about parts of my disability. They said I used my disability to gain sympathy or manipulate people with it.
Have you experienced strangers, friends, or acquaintances speaking about you in a negative light when it concerns your disability?
leah-leilani replied 1 year, 1 month ago 5 Members · 7 Replies -
7 Replies
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Once when I stood up in a public space to reach something, some guy said “Nobody asked me, but it seems to me, you don’t need that fancy chair.” I have often felt that type of a remark from bi-standers. I said, “That’s why nobody asked you!” Let them walk a mile (or 10 steps) in my shoes and I bet they would want some way to get around and function easier too!
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Wow, Pete, great response! I stood out of my wheelchair, and someone yelled, “it’s a miracle” luckily, I was with my friends, who ripped the guy a new one, lol.
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I used to care what people thought about my disability and how when I’m in my power chair that I do seem pretty normal sitting there, not anymore. Those people that think I am faking are not people I want in my life anyway.
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I agree! What people think of me is none of my business; now, if they approach and say something to me, I guess they made it my business! But I need a good response that hopefully resonates with them and makes them think twice before approaching and speaking on things they know nothing about!
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My lazy primary doctor refuses to test me for anything. He says I do not look like I have any problems. That is the biggest problem with Samaritan/SS/UHC insurance, that the support and approval of the PCP is required to get any medical treatment. I am dying of LGMD, GSN, MSN, CMD and others, but the PCP just collects money for telling me it is all fake, put together by universities. oldkarl
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That sounds illegal, but again I am sure doctors have a way to avoid such lawsuits. I hope you can find a way to make sure you get a diagnosis and peace of mind of finally knowing what type of MD you have and start working with that organization to get you into trials or funds to assist you.
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Karl, that is the worst part about this situation and people’s opinions-when you get refused help. You didn’t go to the doctor’s for their opinion, you went there for medical help. For me, my illness is undetectable through normal bloodwork and tests. They have to look at the cellular level and even then might not find anything but I still do have a disability!
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