Tagged: abandonment, ableism, Asking for Help and MD, feeling alone and MD, happiness and MD, living with MD, mental health, mental health and MD, stressors, therapy and MD, young adult and MD
- This topic has 2 replies, 3 voices, and was last updated 11 months, 2 weeks ago by Pete Barron.
May 31, 2022 at 2:58 pm #18040Danielle “Dani” LiptakParticipant
Today is the end of Mental Health Awareness month. According to a 2018 neuromuscular healthcare partnerships survey, 75% of patients experience psychological symptoms. Being diagnosed and living with a neuromuscular disease affects many aspects of life. These factors can impact mental health:
• Specifics of the diagnosis
• Chronic or progressive
nature of the condition
• Symptom management
• Care needs along with the
• Thought patterns
• Access to care
• Quality of life
• a sense of purpose
• Cognitive changes as
an effect of the disease,
including difficulty with
communication or memory
• Personality changes
• Excessive sleepiness
How has your neuromuscular disease impacted your mental health? What steps have you taken to curve mental health issues related to MD? What would you suggest to younger people or those recently diagnosed with MD about what to do for their mental health?
June 22, 2022 at 9:14 pm #18052Leah LeilaniParticipant
I would say mental health has a huge impact on MD, at least, in my experience. Just because you have something going on mentally, doesn’t mean it won’t affect you physically. I used to have horrible insomnia and could not get the rest my body needed until I was put on anti-anxiety medication. Mental health is just as important as physical health.
June 24, 2022 at 7:00 pm #18054Pete BarronParticipant
I dislike drawing an imaginary line between “mental” and “physical” health. Our heads are part of our bodies, anything that effects your body effects your brain and visa-versa! When we are sad our bodies hurt and when our bodies hurt we are often sad. Especially with a “neuromuscular” disease, there is no line.
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