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Late onset of MD
Was your onset of Muscular Dystrophy later in life? How old were you when you first started noticing symptoms? Do you look back on your life and now attribute unexplainable bodily/muscle actions or feelings to symptoms of MD? Did you fall or trip a lot as a kid? Were you slow at exercise activities? Did you pass on your MD to your child but never thought you’d one day experience onset yourself?
My mom was a carrier of MD until a couple years ago. As a child she was always slow when running the mile in PE and found it odd that she tripped so much. Although she experienced these minute symptoms, they didn’t stop her from hiking Mount Whitney (the tallest peak in the continental United States. These days, she uses a scooter to travel longer distances and is seen by my specialists as well.
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4 Replies
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I had a very late onset and noticed symptoms when I was 47 years old. I am now 60 years old. I have LGMD2L. I can definitely look back and see that I had some minimal symptoms before 47, for example I always had difficulty with balance so I never was good at skateboards or surfboards or anything like that. But I had a lot of power and I was a weightlifter bench pressing 300 pounds and squatting 400 pounds. After 13 years with the illness I have lost all of that It is now about living creatively and learning how to use the good muscles I have.
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Ralph, I totally thought of you when I was making this topic. I can’t even imagine lifting 300 pounds. I love your positive outlook even though your life has taken a total 180 degrees.
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Leah, thank you. There is no direction except forward! Appreciate all you do!
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I couldn’t agree more. Thank you for all you do as well Ralph! So glad to have you as a columnist!
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