• Social Media and YouTube

    Posted by leah-leilani on February 3, 2019 at 12:30 pm

    This last Christmas I really enjoyed watching some of my favorite YouTubers participate in Vlogmas. One YouTuber I follow is Amy Lee Fisher. She has a condition call Elhers Danlos Syndrome and her channel is all about spreading awareness of her disease and what her life is like.

    Do you guys follow any chronic illness or disabled YouTubers whom you can relate to and that inspire you?

    danielle-dani-liptak replied 1 year, 10 months ago 2 Members · 1 Reply
  • 1 Reply
  • danielle-dani-liptak

    January 25, 2022 at 4:28 pm

    I enjoy watching Youtube Videos of other disabled folx, especially when they have physical disabilities, which I tend to relate to more. Often, they will share tips, advice, or personal stories that I find relatable. Unfortunately, I will often get caught up in the comment section. I will read people’s comments that make me hate going on Youtube. I, of course, believe in freedom of speech and expression, but a lot of the comments come from a place of hate or misunderstanding. The famous Youtube and social media influencers can respond well to those types of “trolls,” as they are known around the social media world. I prefer the people with disabilities sharing their stories because it is essential and brings so much awareness. Maybe I need to develop a thicker skin when it comes to strangers’ comments on the internet. Still, I can’t help but wonder if there is a correlation between how strangers speak about disabled people on the internet and how we are treated by society and in public—just a thought when I watch channels like Squirmy and Grubsand Wheelchair Repunzles pages.

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