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The pros and cons of having a rare disease
Do you feel like an outcast because of your disease? Do you feel as though no one understands you, not even your doctors? Does this make you feel lonely?
Having a rare disease can be frustrating at times. Finding a diagnosis makes you feel as if you’re a guinea pig, being poked with needles and shoved under a microscope. Your classmates know nothing of the separate life you live at the hospital.
As I’ve gotten older, I’ve realized that there are advantages to being rare. It almost becomes a sort of identity or reputation. Your voice becomes valuable because people can learn from you and the life you live.
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