World FSHD Day - Advocacy Work - Muscular Dystrophy News Forums

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Advocacy Work

World FSHD Day

Posted by Danielle "Dani" Liptak on June 22, 2022 at 2:13 pm

This past Monday, I celebrated World FSHD day. I had a comedy fundraiser; it was one of the most unforgettable nights of my life! I will share more about what I did and how much we raised next week, hopefully!

Danielle "Dani" Liptak replied 1 year, 7 months ago 2 Members · 2 Replies
2 Replies

Leah Leilani

Member
June 22, 2022 at 9:16 pm

I love that you did this and doing it at the comedy club you work at served a great platform I’m sure! I’m eager to hear more about what happened and how much you guys raised!
Danielle "Dani" Liptak

Member
September 23, 2022 at 9:48 am

WE RAISED CLOSE TO 5,000 DOLLARS! It was a fantastic evening! We had food, drink specials, raffles, five comedians, and an almost full house! The bridge was lit orange as well! I can’t wait till next year to do it bigger and better! I will most definitely start earlier in my planning. If anyone wants fundraising advice, I would be happy to help answer any questions.

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