In this uplifting story from New Jersey News 12, a two-year-old boy with Duchenne muscular dystrophy has been made an honorary police officer at his local precinct. Seven ways Becker and Duchenne muscular dystrophy affect patients. The Spotwood police department in New Jersey invited Trent Powers and his family to…
Seven-year-old Ashlyn Barrett joined up with the Maryland college basketball team a couple of years ago as part of Project Impact, a program that pairs sports programs and children with serious illnesses. Ashlyn has muscular dystrophy. MORE: Burger King joined UP Arctic Blast to raise funds for muscular dystrophy.
Hundreds seeking a cure for Duchenne muscular dystrophy will join April 8 at the University of Texas (UT) Golf Club for the Champions to CureDuchenne gala, now in its eighth year. The event, hosted by Quan Cosby, former wide receiver on the UT football team, and presented by…
Summit Therapeutics has confirmed plans for an extension stage of a Phase 2 clinical trial evaluating ezutromid as a treatment for boys with Duchenne muscular dystrophy (DMD). …
Following her husband’s frustration at not being able to do up the buttons on his formal work shirts, Maura Horton came up with a simple and practical solution: magnetic buttons. Study finds that the protein responsible for Duchenne MD influences brain wiring. Find out more here. According to a report…
Data from RECENSUS, a medical chart review of boys with X-linked myotubular myopathy (XLMTM), demonstrates the significant medical burden for children living with the disease, a well as their families and caregivers. Alan Beggs, PhD, director of the Manton Center for Orphan Disease Research at Boston Children’s Hospital, presented data…
Akashi Therapeutics has received an all-clear signal from the U.S. Food and Drug Administration to resume developing a Duchenne muscular dystrophy (DMD) treatment. The FDA had ordered a hold on the development of delayed-release halofuginone (HT-100) after a clinical-trial participant began experiencing life-threatening adverse effects two weeks after beginning the therapy. HT-100 is…
It’s devastating when a friend or family member is diagnosed with a terminal illness. You want to reach out to help, but you’re often unsure how to handle the situation and what to say—fearful of saying the wrong thing. We’ve compiled a list of ways to help support your loved through…
The Burger King restaurant in Kingsford, Michigan, joined forces with the semi-pro football team UP Arctic Blasts to host an event to raise money for the Muscular Dystrophy Association. RELATED: Ohio boy to start Exondys 51 for treatment for Duchenne muscular dystrophy. According to a report on uppermichigansource.com the…
For years, Lexi Pappas hid the fact she had facioscapulohumeral dystrophy (FSHD) — a hereditary muscle wasting disorder that begins in the face and gradually spreads to the shoulders and upper arms, and sometimes also to the legs. As the disease took its toll on Lexi — causing her…
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