It’s Never Just a Cold

I have shared many times in this column that I have three sons with Duchenne muscular dystrophy. People sometimes think I’m an expert on the subject. But the truth is that my boys are unique, and Duchenne has affected each of them differently. Their disease progression and weakening muscles…

What Do You Know? Exploring the Questions We Should Ask

I wanted to expand on my last column by delving into the types of questions we should ask when presented with a new ailment, such as muscular dystrophy. I’d like to start with an anonymous quote: “It ain’t what people don’t know that hurts them, it’s what they know…

To Care Is to Share (Knowledge)

This week, I wanted to visit the reason I started writing this column. However, to describe that rationale, I need to revisit the moments soon after I received my diagnosis. I was diagnosed with limb-girdle muscular dystrophy (LGMD) in the late 2000s. I remember my primary physician calling…