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What’s missing from your Duchenne care team

More videos

Brenda Wong, MD

Alan Chaulet

Colin Werth

Finding trusted Duchenne care

Honest conversations with MD

Speaking up in Duchenne care

Overlooked support

Collaborative care

Community insights

Trusting specialists

Regular huddles

PT frustration

Specialty Care

Advocacy prep

Protecting mobility

Tracking baselines

Shared decision-making

New medication

Critical resources

See more videos

Brenda Wong, MD, shares what team members she thinks make an enormous difference on a Duchenne care team, but are often lacking.

Transcript

I must say that what is currently needed—but what is missing in most centers—is a pediatrician or a med-peds provider who could play the role of the quarterback, connecting the dots for patients’ multiple medical and pediatric issues. That would streamline their care into a focused, coordinated care plan.

More videos

Critical resources in a Duchenne emergency
Weighing whether to start a new Duchenne MD medication
Shared decision-making between Duchenne patients and providers
Taking advantage of charting software to track Duchenne
See more videos

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