When your child starts school you may need some help settling in and preparing the school and teachers for meeting your child’s needs. The Muscular Dystrophy Association (MDA) offers a range of educational resources designed to help children with muscular dystrophy and spinal muscular atrophy (SMA) get the most out of school life and enjoy a fulfilling education.
Here are some of the resources they offer:
A local representative of the MDA can attend school meetings with you to ensure the school understands the condition and how they can help your child get the best education and fully participate in school life. This communication can be ongoing to keep up with your child’s changing needs as they go through the school years and to make provisions for any long absences.
In addition, the school will need to know of any modifications or accommodations it needs to make to ensure your child’s safety at school and that they won’t be at an educational disadvantage.
Parents often find it useful if someone from the MDA talks to their child’s entire class or year regarding their condition. Explaining why your child needs specialized equipment and classroom assistance and that despite their disability, your child can be an active member of the class and a great friend will help them accept and befriend their new classmate, smoothing over any initial doubts children have and to pave the way for them to be included quickly.