Parent Project Muscular Dystrophy (PPMD), a nonprofit organization fighting against Duchenne muscular dystrophy (Duchenne) recently designated the University of Iowa Children’s Hospital (UI Children’s Hospital) a Certified Duchenne Care Center. UI Children’s Hospital is now the 7th center certified by PPMD, and is recognized for its dedication to improving care…
The Muscular Dystrophy Association recently announced the start of the 13th annual “Appetite for a Cure” campaign to raise critically-needed funds and mobilize awareness to help the MDA improve the lives of both children and adults who live with muscular dystrophy. From February 2 through March 22, more than 130 Sailormen/Popeye’s restaurants will participate…
Renowned lawyer and health advocate Kristin Stephenson was recently named by the Muscular Dystrophy Association (MDA) as the organization’s Vice President of Policy and Advocacy. Stephenson was already an active member of the MDA community and now, with her new responsibilities, she will be implementing, developing and overseeing government and advocacy relations strategies to better achieve…
Marathon Pharmaceuticals, LLC, a biopharmaceutical company currently developing treatments for rare diseases, recently announced that the FDA granted the Fast Track designation for their deflazacort drug to treat Duchenne Muscular Dystrophy (DMD). In addition, the company is also developing several strategies to address neurological movement and muscular disorders. DMD is a fatal…
Claritas Genomics announced that it will be using the NextCode Health’s integrated and clinical research platform to analyze sequencing-based clinical diagnostic tests. This partnership will allow Claritas to interpret its genome analysis faster and more efficiently so that tests and results can be delivered earlier, improving diagnosis of diseases such as duchenne muscular…
The ALS Association and the Muscular Dystrophy Association (MDA) recently teamed up to fund a research project whose goal is to find a therapy for amyotrophic lateral sclerosis (ALS) or Lou Gehrig’s Disease. The nonprofit associations are both committed to funding and fostering treatments and an eventual cure for ALS, and to provide care…
The Parent Project Muscular Dystrophy (PPMD) organization has announced that it will award a $500,000 grant to Akashi Therapeutics, Inc. (Akashi) to fund clinical trials that will assess whether the company’s HT-100 (delayed-release halofuginone), a new investigational drug, is safe and effective against Duchenne muscular dystrophy. Duchenne muscular dystrophy…
A group of local CITGO marketers in Wisconsin are celebrating a year of successfully supporting the Muscular Dystrophy Association (MDA). The story is yet one more example of the pride and commitment among those who advocate and fundraise for treating and eventually curing the disease. In 2014, the eight marketers,…
Almost $800,000 in funding was recently awarded to Murdoch University researchers from the Centre for Comparative Genomics (CCG) to develop genetic drugs to treat rare diseases. The money comes from the National Health and Medical Research Council (NHMRC) and will allow for the expansion of successful research into Duchenne Muscular Dystrophy…
The Muscular Dystrophy Association (MDA) selected Merkle Response Management Group (Merkle RMG), a branch of Merkle, the nation’s largest private agency, to manage the MDA’s direct mail donation processing requirements. The MDA is the world’s leading nonprofit health agency working…
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