As a kid, I found it difficult to bond with other children with muscular dystrophy (MD). As a young teen,…
Leah Leilani
Leah is a Southern California-based patient writer. She’s been an active member of the muscular dystrophy community since her regional ambassadorship with the MDA beginning at the age of 10 after her diagnosis of a rare neuromuscular disease, mitochondrial myopathy (Mito). Leah advocates for those with disabilities and promotes an understanding of her condition by evoking a positive outlook upon the obstacles she faces. Leah’s work doesn’t just stop at her column: she also doubles as a co-moderator on the MD News Forums. Away from her jobs, Leah is known among family and friends for her artistic creativity and outgoing personality.
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Articles by Leah Leilani
Most people with a chronic illness inevitably learn to expect the unexpected with their health. No matter how meticulously I…
Finding the perfect Christmas gift requires listening intently to the recipient’s wants and needs. This year, the social media team…
A recent cold front has swept through the U.S. As the snow and rain arrive, they bring problems for my…
It’s over a month since my gallbladder surgery, and I couldn’t be happier with my healing process. I previously wrote…
Fall and winter have always been my favorite seasons. I eagerly await the cooler weather by prematurely washing my sweaters…
Sometimes life with a chronic invisible illness can feel backward and upside down. As if anything that I do, whether…
“That’s right. You’ll be able to resume your regular diet after gallbladder removal.” My surgeon’s words ring in my ears…
In the summer of 2017, I received an email from a woman named Serena Lawrence. She had discovered me on…
For most of my life, I’ve suffered from viral-induced asthma. While coughing and wheezing are often a constant with…