Initial misdiagnosis is a common experience of those living with chronic illnesses. Many diseases have similar characteristics,…
Leah Leilani
Leah is a Southern California-based patient writer. She’s been an active member of the muscular dystrophy community since her regional ambassadorship with the MDA beginning at the age of 10 after her diagnosis of a rare neuromuscular disease, mitochondrial myopathy (Mito). Leah advocates for those with disabilities and promotes an understanding of her condition by evoking a positive outlook upon the obstacles she faces. Leah’s work doesn’t just stop at her column: she also doubles as a co-moderator on the MD News Forums. Away from her jobs, Leah is known among family and friends for her artistic creativity and outgoing personality.
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Articles by Leah Leilani
The time when a girl’s body matures into that of a young woman isn’t how it’s portrayed in…
A few weeks ago, I attended the Los Angeles Abilities Expo for the first time. Because I am now a…
I received my mitochondrial myopathy diagnosis 13 years ago. I became involved with the Muscular Dystrophy…
Teachers must educate classes full of rambunctious, bored kids while trying to keep them engaged and quiet. Having…
Managing one’s health while living with a disability requires much more than regular trips to the doctor and…
A couple weeks ago, a blogger with mitochondrial myopathy posted an interesting piece of advice in her…
Many YouTubers create meaningful content about their lives with disability and chronic illness. By showing what it’s like…
Spoiler alert: This column reveals some plot details of the newly released film “The Upside.” All over the world,…
In this day and age, when we have so much awareness about diversity, it surprises me how judgmental…