Wendy Henderson,  —

  In this video from Muscular Dystrophy UK, patients, caregivers and medical professionals talk about some of the best practices that should be adopted when it comes to the treatment and management of muscle-wasting diseases such as muscular dystrophy (MD) and spinal muscular atrophy (SMA). They explain how many…

Mattie Stepanek’s story is well-known in the MD community. Mattie was the youngest of four children, all of whom died in childhood from complications due to the genetic neuromuscular disorder, dysautonomic mitochondrial myopathy. MORE: Musclar dystrophy quote: Mattie Stepanek Mattie touched the hearts of millions of Americans and was a…

In this episode of Muscle Owl Talks, host Peter Duffy chats with Jon Hastie, a Duchenne muscular dystrophy patient who made the film A Life Worth Living. Jon talks about the film and his charity DMD Pathfinders and what it’s like living with Duchenne as an adult.

This video from Muscular Dystrophy UK is all about 16-year-old Karis Williamson from Inverness, Scotland. Karis used to love going to school, but as she got older, she found it frustrating and felt like an unvalued member of the class. Feeling left out and like a burden, she…

This Macmillan Cancer Support video shares some tips on how to get the most out of your doctors’ appointments and hospital visits. MORE: Comedian with muscular dystrophy discusses jokes, dating and sex Dr. Davina Deniszczyc explains that before you meet with your doctor, it’s a good idea to prepare…

The Muscular Dystrophy Association (MDA) is the largest organization in the U.S. dedicated to helping children and adults with muscular dystrophy (MD), as well as their caregivers and families. In addition to the resources it offers on a full-time basis, the MDA also has some limited-time opportunities…

Independent living can be achievable for many adults with muscular dystrophy (MD), but there are various factors to consider to ensure you get the best care and help available. Often the greatest challenge is finding and managing your personal care assistant (PCA), but according to the Muscular…

In this video from Muscular Dystrophy UK, two teenagers share what it’s like living with the disease and some of the frustrations they experience on a day-to-day basis. MORE: How service dogs can benefit people with neuromuscular disorders Fourteen-year-old Sam from Cheltenham and 13-year-old Zoe…

In this video from Muscular Dystrophy UK, Dr. Ros Quinlivan from the Queen’s Square Centre for Neuromuscular Diseases in London talks about health care for people living with congenital muscular dystrophy. MORE: Four treatment areas for muscular dystrophy Dr. Quinlivan explains that CMD covers a wide…

Olympian and fastest man on the earth, Usain Bolt, has teamed up with watch makers Hublot to design a special edition watch that will be auctioned in support of Duchenne muscular dystrophy (DMD) research, according to TMZ.com. MORE: Six complications of muscular dystrophy The 18-carat gold and sapphire watch is…