Columns

Why I’m grateful for Muscular Dystrophy News Today

While writing this today, I’m marveling at how swiftly the passage of time has occurred. It’s been almost a year since I published my first column for Muscular Dystrophy News Today! In my debut column, I documented how, after more than two decades of battling Duchenne…

After 17 years, my beloved DMD caregiver is moving on

On July 6, I watched my favorite footballer at Chelsea Football Club, César “Dave” Azpilicueta, bid an emotional farewell to fans. I’ve seen him win every trophy possible at club level and captain the side to their second UEFA Champions League triumph in 2021. I even got to meet…

Some advice on reading facial expressions and body language

I recently talked with a friend about body language and facial expressions. She’d attended a public hearing where she ended up sitting just behind the main speaker. As the hearing progressed, she became certain she’d be seen on Zoom. That made her extremely conscious of her facial expressions and body…

How Duchenne MD helps my family live better

The toddler was crying, hungry for a snack, standing just behind me as I sliced pieces of watermelon. But I was smiling. The big kids were in the pool, and I knew they’d be delighted to have watermelon on the deck. I cracked open the sliding glass doors and yelled,…