Columns

We had a tough day here this past week. Everyone was tired, and emotions were running high. After a long day, we hit a breaking point. I was going on day six or seven as a single parent while my husband was traveling with one of my sons for…

My oldest son, Max, was diagnosed with Duchenne muscular dystrophy (DMD) on July 10, 2010. During the following year, my sons Rowen and Charlie were also diagnosed with DMD. In a few days, it will be the 12th anniversary of Max’s diagnosis. But for me, July 10 serves…

This week’s column is a little different than usual. Hawken Miller, a fellow Muscular Dystrophy News columnist who has Duchenne muscular dystrophy (DMD), reached out to collaborate. Hawken, who’s also a features writer for Bionews, the parent company of this website, asked me five questions about being the parent…

This week’s column will be slightly different than normal. I reached out to fellow Muscular Dystrophy News Today columnist Betty Vertin, who has three boys with Duchenne muscular dystrophy (DMD), ages 16, 13, and 11, to seek her collaboration. I asked Betty five questions about life with Duchenne,…

Some days do not want to be good ones. We had one of those days this past Sunday. I was determined to get to church on time. From the get-go, many factors were working against me. For one, my husband wasn’t home. My son without Duchenne, Chance, is playing…

The seasons are all special to me and necessary to one another. Each holds its own challenges and wonder. Here in Nebraska, we are fortunate enough to experience all four — winter, spring, summer, and fall. Every time I enter a new season, I think it’s my favorite, but by…

A conga line of people snaked through shaded outdoor tables as the setting Florida sun warmed their faces. For all the conga lines one can imagine, this one was slightly different — people in wheelchairs were also grooving to the music. They had Duchenne muscular dystrophy (DMD), and they…

Motherhood was not something I was always sure I wanted. The idea of motherhood scared me. I didn’t think I had what it took. When I think of the word mother, I think of love — and I feared I didn’t have enough to give. That changed the moment I…

New places, new people, new things: They’re exciting! As a parent, I encourage my children to try new things, step outside their comfort zones, and see what the world has to offer. There is no difference in how I parent my children with Duchenne muscular dystrophy (DMD) and my…

The last time I traveled on my own without my parents was last May, when my friends and I went to Hawaii. While my parents did come with us, they kept to the hotel room and let us explore. Being away from the comfort of home made me realize I…