Since my internship at The Washington Post, I’ve done freelance work at outlets ranging from The Forward, a Jewish-focused website, to Dot Esports, and of course, Bionews, the publisher of Muscular Dystrophy News. In the past year and a half, I’ve realized that working for…
Columns
Christmas is upon us, and for many, it might not even feel like the holiday season at all. We’ve been forced to stay away from family, our finances are tight, and uncertainty lingers about how 2021 will unfold. For me, being cooped up…
This year has been full of seemingly insurmountable struggles for everyone. As we resolved one hardship, another seemed to suddenly appear, creating an endless cycle that rocked our mental stability. I include myself in this. So, it’s no wonder why most of us are eager to end this…
How to Avoid a Fall
Having Duchenne muscular dystrophy is scary for a number of reasons. High up on that list is experiencing a fall. That’s especially true for those who have been on steroids for many years. Our bones aren’t as strong because of it. For those of us in a transition…
The holidays are notorious for being one of the most hectic times of the year. People jump at the opportunity to score the best deals, and they sprint to grab the last toy on the shelf. Each year, as my mom decorates the Christmas tree…
I always hope to impart a positive message to my readers and exude joy in life whenever possible, but I also know it’s OK to be upset, even angry, at times. I have to face the peaks and valleys the same as anyone else, but I also have…
Technology is an essential tool I use both in my social life and to be more productive at work. While it can make certain things I struggle with easier, it also has its ups and downs, just like everything in life. My daytime hours are spent staring at…
If 2020 hasn’t been a challenging year for you, that’s great news. But for me, like many others, this year has been a lesson in overcoming adversity, whether it’s due to sheltering in place from COVID-19, losing a job, or facing a mental…
The 4 Categories of Tiredness
Those of us with invisible chronic illnesses master the art of mindfulness for our bodies. Since our symptoms show little signs of existence, we must work hard to translate our body’s hidden language of fatigue. Neglecting this skill could impede receiving the medical help we so desperately need.
On Sept. 29, part of my life was lost. My dog, Gus, who had been a staple of the Miller family household for 13 years, left the world. To where, we can only guess, but he left parts of his odd personality with us and gave us memories we will…
Recent Posts
- I rarely answer honestly when asked, ‘How are the boys doing?’
- Trial testing gene-editing therapy PBGENE-DMD gets FDA green light
- A winter blizzard had me cooped up at home for days
- New Phase 3 trial of Duchenne gene therapy SGT-003 to begin dosing
- The rule of 10 helps me navigate bad days with LGMD