Motherhood was not something I was always sure I wanted. The idea of motherhood scared me. I didn’t think I had what it took. When I think of the word mother, I think of love — and I feared I didn’t have enough to give. That changed the moment I…
New places, new people, new things: They’re exciting! As a parent, I encourage my children to try new things, step outside their comfort zones, and see what the world has to offer. There is no difference in how I parent my children with Duchenne muscular dystrophy (DMD) and my…
I drive a massive, commercial-size, accessible, 12-passenger Dodge Promaster van with a high roof. And I love it for many reasons. Our van was never — and is not now — my dream car. But just like Duchenne muscular dystrophy (DMD), it is something I have learned to…
Summer! The best time of year for my kids. We are currently counting down the days left of school. In Nebraska, school is out for summer break by the middle of May. So next week, all my children will be on summer break! My kids will spend plenty of…
I had one of those moments that hit you hard with a dose of the future last week. And those hits hurt. I was pushing my baby daughter, Callie, in her stroller. We were on a walk to the middle school my son Rowen attends. I happily thought about it…
I write my columns on Tuesdays. I do this because I procrastinate. My deadline is Wednesday morning, and I’m not about to wake up early on Wednesdays to get it done. I am not a morning person, but I’m too old and have too many kids to stay up late…
I’m late to pick up the kids from school a lot now. I haven’t always been this way, though. Last year, I’d arrive 10 minutes early every day and use it for some quiet prayer time. But since having a baby earlier this year, I arrive late to school…
My family has been on the Duchenne muscular dystrophy (DMD) journey for almost 12 years. During that time, I’ve quietly watched how friendships and making friends have changed for each of my three sons with DMD as they have grown. I’ve traveled farthest down this road with my oldest…
Celebrate? Yes, we do. There was a time when I didn’t think celebrating and Duchenne muscular dystrophy could coexist. I thought a life touched by Duchenne would be voided of happiness, joy, and celebration. I was very wrong. I have since learned that life with Duchenne just makes the…
During Mass on Sunday, the priest talked about an aspect of faith that acts as an infusion for the soul. As a mother of three sons with Duchenne muscular dystrophy (DMD), I loved the analogy and was grateful because I thought it was something my sons would understand. All three…
Get regular updates to your inbox.