Party of 9 – a Column by Betty Vertin

Sometimes living with Duchenne is simply too hard

I love to read, but finding time to sit down with a good book can be challenging in my busy house. As a mom to seven and a primary caregiver to my three sons with Duchenne muscular dystrophy (DMD), quiet time is often interrupted by my children. Occasionally, however,…

Why each stage of DMD progression is uniquely challenging

“The stages of Duchenne.” I remember seeing this heading on many of the websites I obsessively read when I learned that my three sons, Max, 18, Rowen, 14, and Charlie, 12, had Duchenne muscular dystrophy (DMD). The stages of Duchenne are like a timeline of disease progression. Parent…