This patient advocate's journey is full of emotional highs and lows as she navigates raising three sons with Duchenne muscular dystrophy. Despite the uncertainty, every victory, no matter how small, is a celebration of resilience and hope.
DMD life journey
Recent Posts
- How respite care gives my family caregivers much-needed travel breaks
- Continued steroid use tied to slower lung decline in adults with DMD
- In our new home, we will have more space for our sons with DMD
- MDA Engage: Seminar connects neuromuscular community in Hershey
- Our short film, ‘Lov-Able,’ heads to Australian disability-led film festival