This patient advocate's journey is full of emotional highs and lows as she navigates raising three sons with Duchenne muscular dystrophy. Despite the uncertainty, every victory, no matter how small, is a celebration of resilience and hope.
DMD life journey
Recent Posts
- MDA Engage: ‘I am not alone’ was the biggest takeaway in Chicago
- Having more space to spread out in our new home is the best blessing
- MDA Engage: Treatments for muscular dystrophy show promise, face hurdles
- Mentally preparing for the day I can’t play piano because of FSHD
- Perseverance fuels one college grad with Duchenne seeking a job