This patient advocate's journey is full of emotional highs and lows as she navigates raising three sons with Duchenne muscular dystrophy. Despite the uncertainty, every victory, no matter how small, is a celebration of resilience and hope.
DMD life journey
Recent Posts
- A Purple Parade profile amplifies my disability advocacy
- Annual campaign raises $641K to send youths to MDA Summer Camp
- Highlighting the lived experiences of MD patients at conferences
- I now appreciate it when someone says, ‘You have your hands full’
- FDA review begins for full approval bids on 2 Duchenne therapies