Social Clips

Gentle exercise has many health benefits, particularly for caregivers of patients with chronic illnesses. In this video, personal trainer Ryan Krane demonstrates some simple exercises that can help counter the effects of chronic fatigue. MORE: Watch an animated explanation of muscular dystrophy here.  Krane shares five simple…

Service dogs are typically thought of as necessary companions for the visually impaired, but service and therapy dogs can be incredibly helpful for those with neuromuscular disorders. As well as being a trusted friend, service dogs can expand owners’ motor abilities, granting them new independence and allowing them to get more out of…

Emflaza (deflazacort) was approved by the FDA in February 2017 to treat children over the age of five with Duchenne muscular dystrophy (DMD). Unfortunately, due to issues with pricing, the drug hasn’t been available to the public. MORE: DMD access to deflazacort will continue until the cost of Emflaza replacement is decided. The…

Finding out your child has a neuromuscular disorder is an incredibly difficult time for the whole family, but you adjust quickly. While your child’s unlikely to realize they’re different from other children when they’re young, they’ll start to question why they’re different from their peers and siblings as they get older. MORE:…

A family from Bridgend, Wales, U.K. has vowed to channel their energy into raising awareness of Duchenne muscular dystrophy, after a member of their family was diagnosed with the disease. MORE: Boy with Duchenne muscular dystrophy made an honorary police officer. Kirsty Smith first realized something was amiss with her five-year-old son,…

Respiratory care is an important element of care for muscular dystrophy (MD) patients. As the disease progresses, the muscles required to breathe and cough become weakened, forcing some patients to need assistance. MORE: Best practices involve multi-center cooperation for MD patients. Muscular Dystrophy Canada advises MD patients to educate…

Finding out your child has a neuromuscular disorder is an incredibly difficult time for the whole family. It’s perfectly normal to feel a range of emotions, from anger to guilt, depression to denial, as you come to terms with what the future holds. Many parents will go through a period…

Muscular dystrophy (MD) patients are susceptible to lung infections which can often lead to hospitalization. According to the American Lung Association, there are several things you can do to help prevent lung infections. Practice Good Hygiene Regularly washing hands with soap and water — particularly before eating and…

Students in Alberta, Canada are taking hip hop classes to raise money for muscular dystrophy. Hip Hop for MD is an event run by Kim Reinhart with the Pound It Hip Hop Studios. MORE: Five ways to help SMA and muscular dystrophy charities. According to a…

Joseph Penrod from Detroit, Michigan is a 14-year-old boy who is rapidly losing his mobility. Diagnosed with Duchenne muscular dystrophy at the age of six, the disease has gradually taken away his ability to walk and he now needs a motorized wheelchair to get around. According to the…